Uncertainty

Yesterday, I had my first appointment with a medical oncologist. There were two of them and a registered nurse who is also a McGrath nurse. The first oncologist was of a lower rank and just wanted to explain my pathology test to ensure that I understood. They were straight to the point about what needs to be done: 5 months of chemotherapy, radiation, and hormonal tablets for 10 years because I am ER positive, Her2 negative, and have had a large lump and 14 involved nodes removed, and because of all of that a strong possibility of recurrence.   

The radiologist wanted to do a PET scan, and the MRI showed some lesions on my ribs. It was done yesterday, and I am now waiting for the results. The medical oncologist mentioned that if the ribs are 'involved,' the treatment will take a different course of treatment. I feel, and it's probably just my observation, that they are pushing for the right treatment, which is chemotherapy. When I asked them if many people refuse chemo, they confirmed that "a lot" of people do refuse chemo and opt for other parts of treatment like surgery or hormonal tablets.

I also inquired about swimming, and they said it is okay but not during radiation or surgery recovery. I can drive if I do not experience any strong side effects of chemo. I asked if they are aware of whether we are covered under comprehensive car insurance in case of chemo ( I am hearing a lot about this).  They laughed and said that they have never heard that insurance does not cover patients with cancer/chemo in case of an accident claim.

Obviously, I had some silly questions that I do not regret at all. However, they answered all my questions that I asked. Actually, they were "impressed" with my level of understanding. I told them that "my best friend" in this situation is the BCNA website and online network. 

Anyway, a lot of uncertainty ahead as they do not promise anything.  I asked to return to work from home in two months after care plan is in place. They think it is ok and can be good for me, but not mixing much with people because of compromised immune system.  

I believe that staying informed is crucial during this 'nasty journey,' and maintaining a "positive" attitude is equally important, considering that breast cancer is a systematic and serious matter. Bringing negativity to it will not help us. 

Like many of us, I was very nervous and anxious. Before and after the appointment. 

Wishing you all the best FiFik