Two months after finding the lump
Hi BCNA community,
Today is exactly two months since 14 June 2018, the day I found the lump in my right breast that changed everything. I thought it was as good a reason as any to introduce myself and summarise my journey so far. It was cathartic for me to get this all out - but is longer than I intended ( so I fully understand if you skim or don't read it!). I am 41 and live with my partner and three cats, we don't have children.
Discovery and family history
Two months' ago, I put my hand on my right breast and felt a firm lump. My partner felt it too, to make sure I wasn't imaging things, as it seemed to have come from nowhere. I previously found a lump in 2016, which was a fibroadenoma. This lump felt different.
I have a family history of breast cancer on my fathers' side. So I knew it was important to get it checked. After my GP examined it, she arranged an appointment the next day for a mammogram, ultrasound and biopsy. I knew then what she thought it was, although she tried to reassure me that it might be benign.
Scans and biopsy
First up was the mammogram, starting with my left breast, which while uncomfortable, went seamlessly. Next was the right breast. The lady seemed frustrated with me for not following directions properly, but it hurt so much I burst into tears. Up to that point, I had been almost numb about it all. She offered to get my partner from the waiting room, but I thought I might get more upset, so I sat in the change room until I regained my composure. Following an ultrasound, a doctor performed a core biopsy and two fine needle biopsies of other spots (since found to be fibroadenomas). The doctor told me that his job was to be thorough and prepare for the worst case scenario, and that I should try not to think about it until I got my results (which of course had the opposite effect).
Diagnosis
My GP told me in a factual and caring way that I had a 24 mm ER/PR positive tumour (the HER2 results were unclear), and while it would be a matter for the breast surgeon and oncologist to assist me to decide my treatment plan, I would likely need a lumpectomy or mastectomy, followed by chemo, radiation therapy and hormone treatment for 5/10 years. Everything she said has turned out to be pretty spot on. The most difficult part was next - telling my partner and parents.
Further tests and surgery
As the breast surgeon my GP referred me to in Canberra was away, I went to one in Sydney. The breast surgeon said my family history was strong, and referred me for an MRI. While the MRI was costly, it was important to determine what surgery I required as my breasts are dense and the mammogram and ultrasound were not that clear. (I had no idea my breasts were dense or this affected the reliability of the results when I had previous scans in 2016). The surgeon repeated that my pathology showed I would likely need chemo, radiation and HT.
On July 27, I had a lumpectomy, which successfully removed the tumour, and a sentinel node biopsy, which was clear. The day of surgery was tough, because I had a migraine. Thankfully, I recovered and the surgery proceeded. My breast surgeon personally called my partner afterwards to let him know that it went well, which he really appreciated. All up, I have had six trips to Sydney, and my partner or parents have accompanied me each time, their support invaluable.
Next stop -chemo
Chemo starts next Friday, 24 August. I had my first appointment with the oncologist last week. Just before the appointment, further results came in that it was HER 2 positive ( a previous ISH test reported it was HER 2 negative). As a result, I will have 12 months of herception. I was also advised that the pathology showed the cancer was aggressive and fast growing. I had a choice between two types of chemo - four cycles of TC, or 6 cycles of FEC-D. While the FEC-D may reduce the likelihood of recurrence by slightly, it was also more toxic with additional side effects. I was given a couple of days to decide and read some material, and I have decided on TC. It was a difficult decision after only a short discussion with the oncologist, but now it is made, I want to proceed without regret. I have also now had a bone scan, CT scan and heart scan in preparation of chemo.
Work?
As for work, my GP suggested taking at least 6 months off, if not longer to focus on my treatment and recovery. My work is open to me either taking the leave or working part-time, if I can. I think perhaps I should go with my Doctor's recommendation due to the likely/possible side effects from chemo, other treatment as well as fatigue and the emotional impact of it all. I would be interested to hear from others about whether you could work during this time.
Throughout this, my partner has been by my side and my parents cut short a long anticipated trip across Australia to provide support. I have still felt lonely and adrift at times, but it would be so much harder without love and support from close family and friends. Some people have been a bit disappointing, but that's how it goes.
To end on a happy note, a month ago, we got a beautiful kitten from a pet rescue to join our other two cats and he has brought a lot of joy, laughter and cuddles.
Today is exactly two months since 14 June 2018, the day I found the lump in my right breast that changed everything. I thought it was as good a reason as any to introduce myself and summarise my journey so far. It was cathartic for me to get this all out - but is longer than I intended ( so I fully understand if you skim or don't read it!). I am 41 and live with my partner and three cats, we don't have children.
Discovery and family history
Two months' ago, I put my hand on my right breast and felt a firm lump. My partner felt it too, to make sure I wasn't imaging things, as it seemed to have come from nowhere. I previously found a lump in 2016, which was a fibroadenoma. This lump felt different.
I have a family history of breast cancer on my fathers' side. So I knew it was important to get it checked. After my GP examined it, she arranged an appointment the next day for a mammogram, ultrasound and biopsy. I knew then what she thought it was, although she tried to reassure me that it might be benign.
Scans and biopsy
First up was the mammogram, starting with my left breast, which while uncomfortable, went seamlessly. Next was the right breast. The lady seemed frustrated with me for not following directions properly, but it hurt so much I burst into tears. Up to that point, I had been almost numb about it all. She offered to get my partner from the waiting room, but I thought I might get more upset, so I sat in the change room until I regained my composure. Following an ultrasound, a doctor performed a core biopsy and two fine needle biopsies of other spots (since found to be fibroadenomas). The doctor told me that his job was to be thorough and prepare for the worst case scenario, and that I should try not to think about it until I got my results (which of course had the opposite effect).
Diagnosis
My GP told me in a factual and caring way that I had a 24 mm ER/PR positive tumour (the HER2 results were unclear), and while it would be a matter for the breast surgeon and oncologist to assist me to decide my treatment plan, I would likely need a lumpectomy or mastectomy, followed by chemo, radiation therapy and hormone treatment for 5/10 years. Everything she said has turned out to be pretty spot on. The most difficult part was next - telling my partner and parents.
Further tests and surgery
As the breast surgeon my GP referred me to in Canberra was away, I went to one in Sydney. The breast surgeon said my family history was strong, and referred me for an MRI. While the MRI was costly, it was important to determine what surgery I required as my breasts are dense and the mammogram and ultrasound were not that clear. (I had no idea my breasts were dense or this affected the reliability of the results when I had previous scans in 2016). The surgeon repeated that my pathology showed I would likely need chemo, radiation and HT.
On July 27, I had a lumpectomy, which successfully removed the tumour, and a sentinel node biopsy, which was clear. The day of surgery was tough, because I had a migraine. Thankfully, I recovered and the surgery proceeded. My breast surgeon personally called my partner afterwards to let him know that it went well, which he really appreciated. All up, I have had six trips to Sydney, and my partner or parents have accompanied me each time, their support invaluable.
Next stop -chemo
Chemo starts next Friday, 24 August. I had my first appointment with the oncologist last week. Just before the appointment, further results came in that it was HER 2 positive ( a previous ISH test reported it was HER 2 negative). As a result, I will have 12 months of herception. I was also advised that the pathology showed the cancer was aggressive and fast growing. I had a choice between two types of chemo - four cycles of TC, or 6 cycles of FEC-D. While the FEC-D may reduce the likelihood of recurrence by slightly, it was also more toxic with additional side effects. I was given a couple of days to decide and read some material, and I have decided on TC. It was a difficult decision after only a short discussion with the oncologist, but now it is made, I want to proceed without regret. I have also now had a bone scan, CT scan and heart scan in preparation of chemo.
Work?
As for work, my GP suggested taking at least 6 months off, if not longer to focus on my treatment and recovery. My work is open to me either taking the leave or working part-time, if I can. I think perhaps I should go with my Doctor's recommendation due to the likely/possible side effects from chemo, other treatment as well as fatigue and the emotional impact of it all. I would be interested to hear from others about whether you could work during this time.
Throughout this, my partner has been by my side and my parents cut short a long anticipated trip across Australia to provide support. I have still felt lonely and adrift at times, but it would be so much harder without love and support from close family and friends. Some people have been a bit disappointing, but that's how it goes.
To end on a happy note, a month ago, we got a beautiful kitten from a pet rescue to join our other two cats and he has brought a lot of joy, laughter and cuddles.
