Triple positive HER + grade 2A
Hi to everyone! I'm newly diagnosed with a grade 2A triple positive breast cancer, at age 40. So, from what I can understand (and I’m an experienced registered nurse… but not in the area of cancer) ...
Forum Discussion
Hi @nurserach
A warm welcome to the network although I’m so sorry about your having this diagnosis and going through this experience - hoping you are getting lots of care and nurturing at your end and sending warm thoughts your way 🌸🌻 a big salute to you as you are a nurse - such huge respect for all the work you and your colleagues do 👏❤️
Here’s a link to the BCNA triple positive specific group thread https://onlinenetwork.bcna.org.au/group/31-triple-positive-breast-cancer-tpbc you might find useful some of the posts useful - you can request to join and once @Mez_BCNA joins you in to the group you should be able to see the posts.
A warm welcome to the network although I’m so sorry about your having this diagnosis and going through this experience - hoping you are getting lots of care and nurturing at your end and sending warm thoughts your way 🌸🌻 a big salute to you as you are a nurse - such huge respect for all the work you and your colleagues do 👏❤️
Here’s a link to the BCNA triple positive specific group thread https://onlinenetwork.bcna.org.au/group/31-triple-positive-breast-cancer-tpbc you might find useful some of the posts useful - you can request to join and once @Mez_BCNA joins you in to the group you should be able to see the posts.
I was a “Triple Positive” and it is now 9 months on from completing the entire chemo and immunotherapy regime - all good and feeling strong. I have a daily Aromotase Inhibitor tablet (called Letrozole) to reduce oestrogen.
My presentation was similar to yours except my tumour was on the left side, it was 3.8 cm and Invasive Lobular Carcinoma (ILC).
My regime was slightly different to yours although sounds like the same key drugs.
I had Neo adjuvant treatment by IV drip - 6 cycles of TCHP - DoceTaxel Carboplatin Herceptin and Perjeta - each cycle was 3 weeks apart. I found it manageable but not without a few side effects, particularly the feeling of jet lag 🥱 and some neuropathy. But good news is we are all wildly different, so fingers crossed you might have fewer symptoms. On the other hand, in case you start to experience any fatigue, changes in your palate, hair or nail loss and upset gut, remember to be super kind to yourself and seek or accept all offers of help, food for your freezer and anything that gives you the chance to manage your symptoms ☺️🌸!!
I had Neo adjuvant treatment by IV drip - 6 cycles of TCHP - DoceTaxel Carboplatin Herceptin and Perjeta - each cycle was 3 weeks apart. I found it manageable but not without a few side effects, particularly the feeling of jet lag 🥱 and some neuropathy. But good news is we are all wildly different, so fingers crossed you might have fewer symptoms. On the other hand, in case you start to experience any fatigue, changes in your palate, hair or nail loss and upset gut, remember to be super kind to yourself and seek or accept all offers of help, food for your freezer and anything that gives you the chance to manage your symptoms ☺️🌸!!
My usual exercise routine was hard to maintain, so I found enrolling in the hospital’s Oncology exercise rehabilitation program (with the physios supervision) a really helpful way to get through the long haul.
After my Neo adjuvant treatment, surgery (a lumpectomy) and radiation therapy, I continued with Herceptin for another 11 cycles (each 3 weeks apart) and a chemotherapy drug (a compound called “Kadcyla”), I had the extra chemo because whilst I had a good partial response to the Neo adjuvant it wasn’t a complete response. A lot of people’s tumour disappears completely after the Neo adjuvant treatment so the targeted treatment/chemotherapy has been very effective in the Triple Positive cohort! So all up it was about 14 months from start to finish for me.
Sending you all good wishes - just sing out if you have any questions about the treatment.
Sending you all good wishes - just sing out if you have any questions about the treatment.