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Trinny's avatar
Trinny
Member
7 years ago

Time is of the essence

Hi
I was diagnosed 15th Jan 2019 with DCIS. Appointment with the surgeon is booked for 3 weeks time, but I'm freaking out as this time frame for me seems extensive, is it? 
How long has others waited from diagnosis to appointment with their surgeon?  
Am I worrying, when there is little need?

Thanks in advance :)

14 Replies

  • Thank you, you have all placed my mind a little more at ease. To reply to Arpies question, Im from Perth WA, treatment is at Fiona Stanley Hospital, Surgeon Dr Fernandez. That alone freaks me out as I cant find any information on my surgeon :(
  • Hi @Trinny  - Welcome to the blog - lots of support and useful information on what to expect ..... even some laughs to be had, to help cheer you up.

    3 weeks is about 'normal' - tho I was lucky & had my appt in 2 weeks as I was diagnosed on Jan 5th & I contacted the office even tho it wasn't 'open' - and managed to get in on the first day of my surgeon's return from Xmas Holidays.  The waiting is always hard - I've just had a callback on Dec 4th & it took until Dec 21 to get the biopsy done & I was going apeshit!  (All clear.)  That 'wait' never gets any easier.

    Whereabouts are you (Town/city) - we may have members nearby who can point you to resources in your area.  

    Take care - in the mean time, try & keep busy, doing what you love doing - make sure you have a good buddy with you at your appointments as an extra set of ears.  I even recorded my initial appointments on my phone, as the stress of the day makes it difficult to remember all that was said.  Write down any questions that pop into your head - and just work your way thru them with the surgeon on the day.  

    He should have a Breast Care Nurse available to you, who should become your best friend for any other questions after you've gone back home - or just put them up here & someone will give you an honest answer.

    All the best with your appointments  xx


  • Hi Trinny, and welcome to the forum.

    Please don't worry about the wait. This question comes up quite a lot here and it's quite common to have waits of several weeks. If the doctors felt it was urgent, you'd be seen quickly. 

    DCIS means the cancer has not moved out of the ducts. My surgeon said it can sit in there for years and never move.

    I know saying 'don't worry' when we talk about cancer is silly, because it's almost impossible! But I don't think you should be alarmed by the wait at this stage. Try to keep busy, distract yourself as best as you can, and if you have any questions in the meantime, don't hesitate to come here and ask. Big hug, K xox
  • hi Trinny it took me weeks to see the specialist then I wanted a 2nd opinion  diagnosed first week of september end of the october had surgery... back in 2012