@kmakm oh that's interesting, I know its big in the States but not used so much here. I did ask my Oncologist about it but he said the same thing its very expensive and not widely used because of that. I know ladies Ive spoken to OS have said they found it useful in making a decision for treatment. I would have thought too we would have something more available to go together with our diagnosis from pathology uuugh.
Having said that, I was over treated for DCIS in 2011, I had a major lumpectomy, radiation and tamoxifen for 4yrs. I had a recurrence inspite of all of that worst luck, though its been reported that Tamoxifen doesn't work in 1/3 of cases. So at my 2nd diagnosis in 2015 I had a tumor 2.5cm ER+ only, no node involvement, I couldnt have radiation twice, so my only treatment available was chemo. 1yr after treatment I saw a genetic counselor and I was BRACA 1 & 2 negative, and together with all my Specialists decided on a single mastectomy/diep flap reconstruction Feb 2017. So its super hard to know if you are under or over treating, I feel Ive over treated all the way even now with a mastectomy as all pathology was perfect and like the Oncologist said theres no way of knowing at all, whether it would have or wouldnt have come back again. As you said it really comes down to what you want and can live with I guess. Uuugh its all tough going no matter what.. xx Melinda
