Forum Discussion
MrsMorrisey
2 years agoMember
The “journey” begins.
I was diagnosed with grade 2 IDC ER & PR + Her2- on 19/12. I am 50 years old, married with three teenagers at home, two homeschoolers, one working.
I work as a nurse for NDIS.
Getting the diagnosis just before Christmas was horrific.
So far this has been my plan.
Diagnosed 19/12
Follow up call from GP on 21/12 to see how I was
Nothing happens for a couple of weeks over Christmas/New Year.
Follow up call from GP on 21/12 to see how I was
Nothing happens for a couple of weeks over Christmas/New Year.
Bone scan and dye CT scan 5th Jan ( all clear and no lymph activity)
Surgeons appt Jan 8th.
Surgeons appt Jan 8th.
She was lovely and very respectful ( had sat in on a couple of her operations on my surgical rounds)
She talked me through the process and I felt a lot better after that. She also examined me and noted that the lump that was the issue is not actually the cancer, it’s sitting next to it. I have type D density and very fibrous.
She talked me through the process and I felt a lot better after that. She also examined me and noted that the lump that was the issue is not actually the cancer, it’s sitting next to it. I have type D density and very fibrous.
She mentioned that it’s a tricky one to find and that she’ll need to follow a trail of breadcrumbs. Also mentioned that the cancer is sitting in a DCIS. I can’t find any info on others having that.
Today I get the carbon tracer injected and she said that will attach to the cancer so she can see what to take.
Next Tuesday I get the blue dye injection for the lymph node activity then Wednesday have the surgery.
Nothing happened then everything happened!
All this appt making and phone calls while attending a cricket carnival for my son 4 hours from home.
All this appt making and phone calls while attending a cricket carnival for my son 4 hours from home.
My surgeon recommended this site and I’ve been lurking for a bit but today thought I’d share my story.
I can’t believe this is happening and I’d love it to go away but it won’t and I need to remember how fortunate this happens in our public system.
102 Replies
- iserbrownMemberYes
- MrsMorriseyMemberBlue wee after?
- iserbrownMemberYes, it's a blue dye that's used. If you use the search under Sentinel node biopsy you will see various experiences. Mine was the evening before surgery.
- MrsMorriseyMember2 hours!!!! 🙄
- alex76MemberIt’s a scan that takes 2 hours to locate your nearest lymph nodes . They give you a little injection in the breast and take pictures then you wait for an hour massaging your breast and they do it again .Good luck. X
- arpieMemberI've never heard that term before, @MrsMorrisey .... but here's a link to a medical site referring to it.
Let us know how you go afterwards!! It appears to be similar to a Sentinel Node test (which many of us had done) the day before surgery - to identify the nodes that the tumour is 'draining' to. So instead of removing ALL the nodes for testing (like they used to in the old days) they now may only remove 3-5 nodes in the immediate area of the tumour.
https://www.radiologyinfo.org/en/info/lympho
Here's a pic of Female Lymph nodes .... they usually remove 2-3 in & around under your arm.
I hope you are going OK in the lead up to your surgery - this disease mucks with your head even MORE than with your body - so if you are having difficulty sleeping, make sure you have something on hand to help - be it melatonin tabs or even a mild sleeping tablet like Temase.
Keeping busy, both before & after surgery, doing what you love doing really helps. I just went out & fished all day, every day in my kayak! I was out there when I got the call to attend the GP when the biopsy results came in .... and the start of my own BC journey!
Stay away from Dr Google too - as everyone's diagnosis is totally unique - and a lot of stuff on the web is old & outdated & totally not relevant to your own diagnosis.
Write down any questions you want to put to your team - and definitely consider recording your meetings before & after surgery, as it is very difficult to remember ALL that is said, on the day. Also, have a buddy or family member sit in on the meetings with you too, for both physical and mental support. My SIL came with me & she asked some brilliant questions, too! ;)
Take care & all the best! - MrsMorriseyMember@cactusk Thankyou. I’m so pleased for you. What a relief.Does anyone have any knowledge on a lymphosinctigram?
I have searched this site and discussion but can’t seem to find anything
I’m getting one on Tuesday before my surgery and wanted to hear others experiences of this. I’m happy to get it done but do others have this? - cactuskMember@MrsMorrisey.
No stress at all - I’m 54. I had 2 nodes positive (didn’t appear to be from ultrasound nor CAT / MRI scan, and this was discovered post surgery). I totally thought I was going to head down the chemo path, but my med onc recommended the Oncotype DX test. I looked into it and went ahead. It is expensive, but my recurrence score was low (10) so chemo was shown by this test not to be an affective treatment protocol. I was very stressed before I knew the result, but am very grateful that I was able to get this genome assay done (in the US) and that the result was positive for me.I realise that there remains radio and years of endocrine therapy. I’ve been on artificial thyroid hormone since 1998 (total thyroidectomy then 3 x radio iodine treatments ending in 2004) so hormone therapy for years doesn’t phase me. We’ll - hasn’t so far (never say never, right?)
As @@TonyaM & @@arpie have said, one day at a time, and every path is similar yet different.
Absolute best wishes for your surgery.
Kelly - TonyaMMemberHi @MrsMorrisey, depending on the cancer size,pathology and if no lymph nodes involved you might get lucky and just need the anti hormone drugs. I didn’t need chemo the first time but I did when I had a recurrence.Don’t think too far ahead.As far as telling people, I was really sorry I told everyone the first time as I ended up consoling them.I handled it differently the second time by only telling people when I had a plan and information. I also put my husband in charge of answering the phone and front door- instructing him whether I wanted to talk or not. You are going to need about 2wks at least post surgery of being looked after ie someone to cook,clean and maybe wash your hair for you.Time to put yourself absolutely first.Big hugs xx