The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor. 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I am 50 years old, married with three teenagers at home, two homeschoolers, one working. I work as a nurse for NDIS. Getting the diagnosi...","body@stringLength":"1938","rawBody":"I was diagnosed with grade 2 IDC ER & PR + Her2- on 19/12. I am 50 years old, married with three teenagers at home, two homeschoolers, one working.
I work as a nurse for NDIS.
Getting the diagnosis just before Christmas was horrific.
So far this has been my plan.
Diagnosed 19/12 Follow up call from GP on 21/12 to see how I was Nothing happens for a couple of weeks over Christmas/New Year.
Bone scan and dye CT scan 5th Jan ( all clear and no lymph activity) Surgeons appt Jan 8th.
She was lovely and very respectful ( had sat in on a couple of her operations on my surgical rounds) She talked me through the process and I felt a lot better after that. She also examined me and noted that the lump that was the issue is not actually the cancer, it’s sitting next to it. I have type D density and very fibrous.
She mentioned that it’s a tricky one to find and that she’ll need to follow a trail of breadcrumbs. Also mentioned that the cancer is sitting in a DCIS. I can’t find any info on others having that.
Today I get the carbon tracer injected and she said that will attach to the cancer so she can see what to take.
Next Tuesday I get the blue dye injection for the lymph node activity then Wednesday have the surgery.
Nothing happened then everything happened!
All this appt making and phone calls while attending a cricket carnival for my son 4 hours from home.
My surgeon recommended this site and I’ve been lurking for a bit but today thought I’d share my story.
I can’t believe this is happening and I’d love it to go away but it won’t and I need to remember how fortunate this happens in our public system.
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I work as a nurse for NDIS.
Getting the diagnosis just before Christmas was horrific.
So far this has been my plan.
Diagnosed 19/12 Follow up call from GP on 21/12 to see how I was Nothing happens for a couple of weeks over Christmas/New Year.
Bone scan and dye CT scan 5th Jan ( all clear and no lymph activity) Surgeons appt Jan 8th.
She was lovely and very respectful ( had sat in on a couple of her operations on my surgical rounds) She talked me through the process and I felt a lot better after that. She also examined me and noted that the lump that was the issue is not actually the cancer, it’s sitting next to it. I have type D density and very fibrous.
She mentioned that it’s a tricky one to find and that she’ll need to follow a trail of breadcrumbs. Also mentioned that the cancer is sitting in a DCIS. I can’t find any info on others having that.
Today I get the carbon tracer injected and she said that will attach to the cancer so she can see what to take.
Next Tuesday I get the blue dye injection for the lymph node activity then Wednesday have the surgery.
Nothing happened then everything happened!
All this appt making and phone calls while attending a cricket carnival for my son 4 hours from home.
My surgeon recommended this site and I’ve been lurking for a bit but today thought I’d share my story.
I can’t believe this is happening and I’d love it to go away but it won’t and I need to remember how fortunate this happens in our public system.
","customFields":[]},"Conversation:conversation:57569":{"__typename":"Conversation","id":"conversation:57569","solved":false,"topic":{"__ref":"ForumTopicMessage:message:57569"},"lastPostingActivityTime":"2024-03-23T03:46:30.000-07:00","lastPostTime":"2024-03-23T03:46:30.000-07:00","unreadReplyCount":102,"isSubscribed":false},"ModerationData:moderation_data:57569":{"__typename":"ModerationData","id":"moderation_data:57569","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:57569_1":{"__typename":"Revision","id":"revision:57569_1","lastEditTime":"2024-01-11T13:24:30.000-08:00"},"ForumReplyMessage:message:57577":{"__typename":"ForumReplyMessage","id":"message:57577","conversation":{"__ref":"Conversation:conversation:57569"},"author":{"__ref":"User:user:2793"},"revisionNum":1,"uid":57577,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"subject":"Re: The “journey” begins.","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:57577"},"parent":{"__ref":"ForumTopicMessage:message:57569"},"body":"How do others feel about telling people?
I have found most people are really lovely and as I am a Christian I do have a lovely prayer group who are very supportive and not gossipy
I have had a couple of people say weird stuff like I need to eat a raw diet and cancer is trauma stored in the body.
The other was can’t they operate on you earlier?
Don’t you feel weird knowing you’ve got that inside you?
I feel like I need to present my case in a positive way to shield myself from peoples reactions.
A bad reaction makes me feel terrible, like they feel sorry for me then I feel the need to be really positive.
Lots of emotions today.
","body@stringLength":"788","rawBody":"How do others feel about telling people?
I have found most people are really lovely and as I am a Christian I do have a lovely prayer group who are very supportive and not gossipy
I have had a couple of people say weird stuff like I need to eat a raw diet and cancer is trauma stored in the body.
The other was can’t they operate on you earlier?
Don’t you feel weird knowing you’ve got that inside you?
I feel like I need to present my case in a positive way to shield myself from peoples reactions.
A bad reaction makes me feel terrible, like they feel sorry for me then I feel the need to be really positive.
Lots of emotions today.
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Rest assured no question is dumb! Early days, head spinning, lots of new terminology and the how did I end up in this predicament! The Rollis seed is crucial for surgery! Take notice of what the Breast care nurse says. If your workplace hasn't any light duties suitable then you may have to consider time off. Once through surgery, pathology results will follow and give a clear indication of type and treatment! Take care
https://www.bcna.org.au/resource-hub/articles/breast-cancer-pathology/","body@stringLength":"764","rawBody":"@geewizz24 It's a so and so that you find yourself here! Rest assured no question is dumb! Early days, head spinning, lots of new terminology and the how did I end up in this predicament! The Rollis seed is crucial for surgery! Take notice of what the Breast care nurse says. If your workplace hasn't any light duties suitable then you may have to consider time off. Once through surgery, pathology results will follow and give a clear indication of type and treatment! Take care