Forum Discussion
Chanel
10 years agoMember
Tamoxifen .
I can't see what I just posted. I'll try again.
i had a sentinel node biopsy and lumpectomy August 16 th. The cancer removed was very small. It was picked up as suspicious on ultrasound, and after biopsy confirmed as cancer. Mammogram was clear.
been quite a traumatic time. I'm to start taking Tamoxifen soon, and just wanted to get some feedback as to how anyone taking it is finding it.
thankyou
i had a sentinel node biopsy and lumpectomy August 16 th. The cancer removed was very small. It was picked up as suspicious on ultrasound, and after biopsy confirmed as cancer. Mammogram was clear.
been quite a traumatic time. I'm to start taking Tamoxifen soon, and just wanted to get some feedback as to how anyone taking it is finding it.
thankyou
26 Replies
- ChanelMemberHi again Melinda
my surgeon told me that after review of my case with others doctors , that radiation was not likely to be an option for me. That it could in fact detrimental.
I am still meeting with the radiotherapist on Monday, but have pretty well made up my mind not to have it.
i have only found one lady on this site who was told the same as me.
Again I have to trust this is best for me. - melclarityMemberOh I forgot to mention I had radiation together with that surgery and 4yrs Tamoxifen, so there was nothing more I could have done.
We absolutely have to put our trust and faith in the Professionals and honestly if it werent for my Breast Surgeon 5yrs ago after a benign biopsy insisted something was wrong, so I had a lumpectomy and thank goodness otherwise it would have been missed.
I actually dont even think about the medication, its just peace of mind taking it. So rest easy, certainly worth doing.
Melinda xo - ChanelMemberThanks Melinda, no matter how you look at this , there are no guarantees . We have to trust out medical team and keep focussed on living our life to the fullest, staying in the now and being grateful we are alive .
hugs back x - melclarityMemberChanel,
You are correct, Tamoxifen, Arimidex and a few others all do the same thing, they are to protect against Cancer in hormone receptive Cancer. My Oncologist said that taking the medication after all treatment is like putting a lock on the door so to speak...to make sure it never comes back.
My recurrence actually left my Breast Surgeon gobsmacked he said its unexplainable, one of the elitest in Melbourne, there were NO reasons for the recurrence unfortunately. I have ER+ only, I had aggressive treatment, lumpectomy, clear margins, no node involvement and tamoxifen 4yrs. I was put into like a 2% risk of recurrence...just plain old bad luck basically. That is all.
So Chanel, I say to you, absolutely your Medical Team are the ones to listen to, I have no regrets at all, and as much as I don't like Arimidex and the side effects, Im taking it. Honestly, for me, in the scheme of everything, its super easy. I believe you'd be absolutely fine on Tamoxifen.
Hugs
Melinda xo - ChanelMemberThankyou Deanne o:)
- DeanneMemberHello Chanel,
There maybe a number of reasons why Tamoxifen did not work for Melinda but it has worked for many other women. Unfortunately no matter what treatment we are given, some of us will have a recurrence. Nothing has a 100% success rate but most women live long cancer free lives with these treatments. All any of us can do is follow the best recommendations from our medical team for our particular situation. I was on Tamoxifen for 2 years and found I had few side effects. I hope you find the same. As iserbrown suggested your doctors are the best people to answer any concerns you may have. Take care. - ChanelMemberI have spoken to my surgeon in depth about tamoxifen , and the oncologist.
what I'm being told is that the medication will protect against hormone related cancer.
because of osteopaenia I can't take the other medication. It's not like I have a choice. The side effects from the newer drug are more numerous than Tamoxifen is also what I was told. From what I have read in Melindas post , it didn't work - iserbrownMemberPerhaps you should speak with your medical professionals if you are uncertain about Tamoxifen and ask for an alternative if you're not comfortable.
Follow the link below for more information on Hormone therapy
https://www.bcna.org.au/resources/booklets-and-fact-sheets/#sthash.QCWiI67y
Take care - ChanelMemberWhat's the point of taking Tamoxifen then if it doesn't protect you ? That's why it's prescribed ! I'd like a response from this comment.
- melclarityMemberHey!
I took Tamoxifen for 4yrs until I had a recurrence in 2015. I also took it at night, I didnt really notice any side effects in that time, however was advised to throw it away when I was re-diagnosed last year as my Cancer came back inspite of lumpectomy, radiation and 4yrs on Tamoxifen. Chemo last year threw me into menopause so have been put now on Arimidex, which I find side effects are much much more than Tamoxifen. Am sure you'll be ok.
Melinda xo