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Chanel's avatar
Chanel
Member
9 years ago

Tamoxifen .

I can't see what I just posted. I'll try again.
i had a sentinel node biopsy and lumpectomy August 16 th. The cancer removed was very small. It was picked up as suspicious on ultrasound, and after biopsy confirmed as cancer. Mammogram was clear.
been quite a traumatic time. I'm to start taking Tamoxifen soon, and just wanted to get some feedback as to how anyone taking it is finding it.
thankyou

26 Replies

  • Hi, I am also taking tamoxifen. Six weeks after a right mastectomy. Been on for a fortnight now and no effects yet touch wood.Take it at night after dinner. Everyone  one is different so  you  might not have any problems with it. we have to be lucky sometimes surely after all we go through earlier on.  I am happy to take it too if it can keep nasties away. Take care and all the best.  Maz. Xx
  • Hi! we all react differently to medication and if we're on multiple medications and or treatment it is hard to pin point which is the culprit.  Personally, Tamoxifen is at 15 months and 8 years and 7 months to go, but who's counting!  Aching bones, sweating  I settled into a routine of late afternoon for taking Tamoxifen and that seems to suit.  wishing you all the best with it
  • Hi Chanel,
    Only started my Tamoxifen not quite two months ago. I take mine at night and tend to have a lot of hot flushes during the night, am sleeping badly, waking approx every hour (mind you sleep beautifully on my couch for a couple of hours!!)some aches and pains around my left shoulder and underarm, some mood swings,  but that seems to be about it. The aches and pains could be down to doing a bit too much too quickly as I have to keep reminding myself I'm not supposed to be lifting the same amount of weight as I'm used to!! And as for the mood swings it's more annoyance and just making sure I take a deep breath before I reply or say anything sarcastic :(. Really all pretty good, certainly wouldn't be without it. All the best. Xx Cath
  • Hi Chanel,

     I've been taking Tamoxifen since about July last year.  I take it at night to reduce the side effects and haven't really had a lot.  A few hot flashes and some achey joints,  but that's about it.  Good luck with it :)
  • Thankyou for your reply Christina . I'm glad you are fine and doing well
  • Hi Chanel, after I had a lumpectomy back in 2003 I started on Tamoxifen and I took it for many years without any problems. I have a fatty, funny liver which was playing up a bit so after about 8 years my oncologist and I decided to stop Tamoxifen to help my liver a bit. I understand I will never know if Tamoxifen was having a negative effect on my liver or if it was my liver being naughty regardless of it. After almost 10 years of my initial diagnosis I developed secondary breast cancer. It's now almost 4 years after that second diagnosis and I'm fine and still doing very well. A hug for you.