Forum Discussion
Kiwi_Angel
8 years agoMember
Such a scary learning curve
Hi all,
i am just starting to through this process. 3 years ago I found a lump and went for an ultrasound, they found 4 and said they were just fibroadenomas so no further action required. Fast forward 3 years and these lumps had grown and they found a new one so recommended just testing 2 of them. Went and saw a surgeon and he said to just remove them all and that would be it, might have to have some HRT therapy and stop taking the pill. Got the results and the pathologists thought was mucinous carcinoma but had to confer and then came back with papillary carcinoma. Had to have breast sparing surgery and it is now invasive ductal carcinoma and there are areas of DCIS in there too and it is hormone receptor positive which I believe is a very good thing. End result is today is a right sided mastectomy with lymph node removal. The surgeon has told me most likely HRT and radiation afterwards. I’m so scared when the results come it is going to be worse than expected since that is what has been happening since the start and I’m worried about getting lumphoedema. I’m also so angry that this was most likely cancer 3 years ago and I was told there was no need to do anything about it. This is all so scary and new and just trying to work out what everything means (I work in the veterinary industry but trying to figure out the pathology report was a mission). Luckily I have a very supportive husband and great friends and I am trying to be so positive but you cant help thinking worst case scenario every now and then. Sorry about the lengthy rant - thanks for reading
i am just starting to through this process. 3 years ago I found a lump and went for an ultrasound, they found 4 and said they were just fibroadenomas so no further action required. Fast forward 3 years and these lumps had grown and they found a new one so recommended just testing 2 of them. Went and saw a surgeon and he said to just remove them all and that would be it, might have to have some HRT therapy and stop taking the pill. Got the results and the pathologists thought was mucinous carcinoma but had to confer and then came back with papillary carcinoma. Had to have breast sparing surgery and it is now invasive ductal carcinoma and there are areas of DCIS in there too and it is hormone receptor positive which I believe is a very good thing. End result is today is a right sided mastectomy with lymph node removal. The surgeon has told me most likely HRT and radiation afterwards. I’m so scared when the results come it is going to be worse than expected since that is what has been happening since the start and I’m worried about getting lumphoedema. I’m also so angry that this was most likely cancer 3 years ago and I was told there was no need to do anything about it. This is all so scary and new and just trying to work out what everything means (I work in the veterinary industry but trying to figure out the pathology report was a mission). Luckily I have a very supportive husband and great friends and I am trying to be so positive but you cant help thinking worst case scenario every now and then. Sorry about the lengthy rant - thanks for reading
46 Replies
- ZoffielMemberExcellent news) ***collective sigh of relief***
- Kiwi_AngelMemberThanks everyone - feel like a huge weight has been lifted!!
- kmakmMemberHuzzah! Brilliant, and phew! Hang in there.
- AfraserMemberHooray! Always celebrate the good news!
- primekMemberGreat news about CT scan.
- That’s wonderful news about your CT scan @Kiwi Angel! The waiting is so difficult but it does get easier the more you learn. Wishing you all the best for the lymph node pathology. Jane x
- Kiwi_AngelMemberThe breastcare nurse just rang with the results and the CT is all clear and normal. Finally some good news - hubby and I are over the moon. I still have to get lymph node biopsy results so I may still have a fight on my hands but it doesn’t seem anywhere near as bad as we were lead to believe.
- Giovanna_BCNAMemberHello @"Kiwi Angel"
It is hard waiting for scan results. If you feel you would like to speak with one of the nurses, please call our helpline on 188 500 258. - Kiwi_AngelMemberHate the waiting game. Supposed to get a call today with the results of the CT scan and feeling anxious again
- Kiwi_AngelMemberWe received more positive news from the breastcare nurse this morning and she is going to ring me with CT results in the morning. The nurse that was with the surgeon when he talked to me yesterday has told me just to listen to the breast care nurse and my oncologist.