The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor. 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with Negative Emotions","id":"message:72926","revisionNum":1,"repliesCount":8,"author":{"__ref":"User:user:4501"},"depth":0,"hasGivenKudo":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"conversation":{"__ref":"Conversation:conversation:72926"},"readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:72926"},"body@stripHtml({\"truncateLength\":200})":"Good morning, I am new to the forum so apologies if this subject has been discussed previously. I had a double mastectomy in March 2024. Breast Cancer is so prevalent in my family, but all other fam...","body@stringLength":"2256","rawBody":"Good morning, I am new to the forum so apologies if this subject has been discussed previously. I had a double mastectomy in March 2024. Breast Cancer is so prevalent in my family, but all other family members have only needed a lumpectomy, not a double mastectomy. I'm not belittling their experience, but I feel I don't have anyone I can talk to about what a double mastectomy does to your psyche.
Having said that I am conflicted as I am an extremely private person and wanted to keep my predicament to myself. However, my husband, mum and dad, SIL and work boss all told someone, who told someone, who told someone. I feel there was a total breach of my privacy and let down by them, even though they were all so supportive of me in many other ways.
For me, I feel the best way to deal with the emotions of a double mastectomy is to just suppress the feelings, keep telling myself that there is always someone worse off, and keep everything normal. However that is hard to do when you are confronted everyday with a scar from underarm to underarm across your chest, pain is always prevalent somewhere (lymph node removal pain, pins & needles on my back and upper chest, scar pain, internal pain) and now I know everyone knows.
OK, so I've thrown a lot out here, but I guess my questions are: - I'm wondering if anyone else feels betrayed (justified or not) by the ones they love and trusted? How do I get past that? - How do I stop feeling like those that have had a lumpectomy had it easier than me, when I know they all had their own difficult journeys?
I'm normally a positive, glass half full type of person, but I'm so emotionally confused at the moment and this is not the normal me. I usually live my life accepting that everyone's journey is individual to them, but at the moment I just feel like those who haven't gone through a double mastectomy just simply can't understand. And I know this isn't fair, I know it, but it's where my mind is at right now.
Any words of wisdom, tips, life experiences that you could share would be very appreciated, so I can get back to my positive self.
Regards J","kudosSumWeight":0,"postTime":"2024-09-10T15:03:29.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDE","node":{"__typename":"Tag","id":"tag:double-mastectomy","text":"double-mastectomy","time":"2025-03-25T05:02:18.791-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":2,"currentRevision":{"__ref":"Revision:revision:72926_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":271},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"customFields":[],"body":"Good morning, I am new to the forum so apologies if this subject has been discussed previously. I had a double mastectomy in March 2024. Breast Cancer is so prevalent in my family, but all other family members have only needed a lumpectomy, not a double mastectomy. I'm not belittling their experience, but I feel I don't have anyone I can talk to about what a double mastectomy does to your psyche.
Having said that I am conflicted as I am an extremely private person and wanted to keep my predicament to myself. However, my husband, mum and dad, SIL and work boss all told someone, who told someone, who told someone. I feel there was a total breach of my privacy and let down by them, even though they were all so supportive of me in many other ways.
For me, I feel the best way to deal with the emotions of a double mastectomy is to just suppress the feelings, keep telling myself that there is always someone worse off, and keep everything normal. However that is hard to do when you are confronted everyday with a scar from underarm to underarm across your chest, pain is always prevalent somewhere (lymph node removal pain, pins & needles on my back and upper chest, scar pain, internal pain) and now I know everyone knows.
OK, so I've thrown a lot out here, but I guess my questions are: - I'm wondering if anyone else feels betrayed (justified or not) by the ones they love and trusted? How do I get past that? - How do I stop feeling like those that have had a lumpectomy had it easier than me, when I know they all had their own difficult journeys?
I'm normally a positive, glass half full type of person, but I'm so emotionally confused at the moment and this is not the normal me. I usually live my life accepting that everyone's journey is individual to them, but at the moment I just feel like those who haven't gone through a double mastectomy just simply can't understand. And I know this isn't fair, I know it, but it's where my mind is at right now.
Any words of wisdom, tips, life experiences that you could share would be very appreciated, so I can get back to my positive self.
Regards J"},"Conversation:conversation:72926":{"__typename":"Conversation","id":"conversation:72926","solved":false,"topic":{"__ref":"ForumTopicMessage:message:72926"},"lastPostingActivityTime":"2024-09-15T23:16:44.000-07:00","lastPostTime":"2024-09-15T23:16:44.000-07:00","unreadReplyCount":8,"isSubscribed":false},"ModerationData:moderation_data:72926":{"__typename":"ModerationData","id":"moderation_data:72926","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:72926_1":{"__typename":"Revision","id":"revision:72926_1","lastEditTime":"2024-09-10T15:03:29.000-07:00"},"ForumReplyMessage:message:72930":{"__typename":"ForumReplyMessage","id":"message:72930","conversation":{"__ref":"Conversation:conversation:72926"},"author":{"__ref":"User:user:20667"},"revisionNum":1,"uid":72930,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"subject":"Re: Struggling with Negative Emotions","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:72930"},"parent":{"__ref":"ForumTopicMessage:message:72926"},"body":"Sorry to see you here, @jconnolly4285 - I hope you are healing well from your surgery - sadly, it can take a while for the nerves & muscles to 'settle down' after surgery - if your pain & discomfort continues, definitely tell your BC Nurse and/or surgeon xx Some people get Tattoos to 'hide' the scarring & there are some fantastic ideas out there ....
I am so sorry to hear that you are feeling betrayed by some of your family & work place and can fully understand your emotions :( It has really hurt you xx I hope that you can regain some trust with your family and boss .... and that they fully understand that anything they are told, is in confidence, not for repetition. :(
As @iserbrown mentioned, please contact our Helpline, on 1800 4500 258 (Mon-Fri, work hours) to talk thru what has happened .... as dwelling on it will only upset you further. Suppressing your feelings may only add to your distress. :(
I'd also suggest that you listen to Charlotte Tottman's What you Don't Know, until you Do .... She is a specialist BC Counsellor - who has had a double mastectomy, so knows what you've been thru. After her own diagnosis, she found that her experiences had changed her previous 'understanding' of what BC patients went thru ..... you can read her 'story' below in the PDF. And also listen to her podcasts here - they are very easy to follow and I think they may help you on this unexpected journey xx Start with No 13 (the first episode of the first series ...) https://soundcloud.com/bcna/sets/what-you-dont-know-until-you
Everyone's 'breast cancer journey' is different - and weirdly, those who have mastectomies may recover quicker than those who've had lumpectomies! Maybe just try & concentrate on your own recovery & not ponder your rellie's recoveries from BC ... there are so many levels of complexity with anyone's diagnosis ... we can never really compare 'ours' with 'theirs'. :(
Try not to get ahead of yourself, too - and deal with stuff 'as it happens' - don't try & work out what 'may' happen. Just try & Keep yourself busy now ... doing things you love doing, as this disease mucks with your brain more than your body - so keeping it busy doing other stuff should prevent it 'taking over'! ... For me, it was getting out in my kayak, fishing for bream & flatties as often as I could - out there it is just you & your thoughts ..... and my Ukulele Group! They keep me very busy! ;) Maybe, look at trying something new, to refocus your energies ....
Take care & all the best for your ongoing treatments xx ","body@stringLength":"2960","rawBody":"Sorry to see you here, @jconnolly4285 - I hope you are healing well from your surgery - sadly, it can take a while for the nerves & muscles to 'settle down' after surgery - if your pain & discomfort continues, definitely tell your BC Nurse and/or surgeon xx Some people get Tattoos to 'hide' the scarring & there are some fantastic ideas out there ....
I am so sorry to hear that you are feeling betrayed by some of your family & work place and can fully understand your emotions :( It has really hurt you xx I hope that you can regain some trust with your family and boss .... and that they fully understand that anything they are told, is in confidence, not for repetition. :(
As @iserbrown mentioned, please contact our Helpline, on 1800 4500 258 (Mon-Fri, work hours) to talk thru what has happened .... as dwelling on it will only upset you further. Suppressing your feelings may only add to your distress. :(
I'd also suggest that you listen to Charlotte Tottman's What you Don't Know, until you Do .... She is a specialist BC Counsellor - who has had a double mastectomy, so knows what you've been thru. After her own diagnosis, she found that her experiences had changed her previous 'understanding' of what BC patients went thru ..... you can read her 'story' below in the PDF. And also listen to her podcasts here - they are very easy to follow and I think they may help you on this unexpected journey xx Start with No 13 (the first episode of the first series ...) https://soundcloud.com/bcna/sets/what-you-dont-know-until-you
Everyone's 'breast cancer journey' is different - and weirdly, those who have mastectomies may recover quicker than those who've had lumpectomies! Maybe just try & concentrate on your own recovery & not ponder your rellie's recoveries from BC ... there are so many levels of complexity with anyone's diagnosis ... we can never really compare 'ours' with 'theirs'. :(
Try not to get ahead of yourself, too - and deal with stuff 'as it happens' - don't try & work out what 'may' happen. Just try & Keep yourself busy now ... doing things you love doing, as this disease mucks with your brain more than your body - so keeping it busy doing other stuff should prevent it 'taking over'! ... For me, it was getting out in my kayak, fishing for bream & flatties as often as I could - out there it is just you & your thoughts ..... and my Ukulele Group! They keep me very busy! ;) Maybe, look at trying something new, to refocus your energies ....
Take care & all the best for your ongoing treatments xx 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