Forum Discussion
Rona
2 years agoMember
Struggling through Chemo
Hi all,
My nurse has just introduced me to this group.
I’m hoping to connect and share my story and hopefully somehow feel better.
After being diagnosed and a short time later having a mastectomy and all lymph nodes removed, chemo started just before Christmas and I am struggling with it!
Ive got another 2 months of chemo before 5 weeks of Radiation…… would love to hear other stories.
I have a fantastic support group of family, friends and colleagues but they just can’t possibly understand what I’m going through.
My nurse has just introduced me to this group.
I’m hoping to connect and share my story and hopefully somehow feel better.
After being diagnosed and a short time later having a mastectomy and all lymph nodes removed, chemo started just before Christmas and I am struggling with it!
Ive got another 2 months of chemo before 5 weeks of Radiation…… would love to hear other stories.
I have a fantastic support group of family, friends and colleagues but they just can’t possibly understand what I’m going through.
Looking forward to connecting 😊
344 Replies
- CeeCeeMemberI have a question please.
l’ve just finished 4 rounds of AC and will start 12 rounds of Taxel in a few weeks.
The staff at the Cancer clinic did not give me anti nausea tablets for when I start Taxel so I’m presuming I don’t need it. Is that correct? - Katie46MemberHi @Coastiejas, I'm going ok after radiation. I get the occasional blast of tiredness, but nothing like chemo. I have a bit of redness under my arm and I've been smothering it in sorbolene and so far it's not painful and the skin hasn't broken. Everywhere else seems to be settling down, although my nipple is peeling on the radiation side 😮, which is normal. I'm back to work 4 days a week, and full time mid August, and will see how I go. Work have been really great and have left it up to me to decide how much I can do. I'm actually feeling fairly normal. My hair is growing and I have definite eyelashes and eyebrows 🥳
I'm considering buying one of those pill boxes as I know I'm going to forget if I've taken one. I'm already getting hot flushes, so hopefully the side effects aren't too bad for me. The unknown is always a bit daunting, so I'm keen to get started and see what I'm dealing with.
Hope you enjoy being back at work Monday, back to a bit of normality 🙂 - CoastiejasMemberHi @Katie46
That sounds pretty much like my regime moving forward too....I've already had my first goserelin depot and start exemestane a week after my second injection next month. My experience is that the goserelin amps up those menopause systems, for me lots of hot flushes at night and sprouting facial hair everywhere! I'll have the infusions for my bones and take vit d and calcium. I start ribociclib next year. Like you I've never taken medication until all this happened and I reckon I'll be rattling like a maraca with all of the tablets! How are you going post radiation? I'm a bit tired still and pink, I've got some broken skin under my armpit but otherwise OK. I'm starting back at work on Monday 2 days a week.
Enjoy your long weekend and have a great time heading off in your caravan.....will be great to get away! 😀 - Katie46MemberHello everyone. So I have confirmation of my next phase treatment. Monthly Goserelin injections starting 2 August, a week later I start Letrozole tablets daily. On 30 August I start Abemaciclib tablets twice a day for 2 years. Every six months I'll be given Zometa infusions for my bones and I also have to take calcium plus vitamin d daily. I don't think there is anything else. For someone who never needed daily medication that is quite a list.
The Abermaciclib was added to the PBS in February and is now available for women with aggressive early stage breast cancer.
My oncologist told me my chance of reoccurance will improve to approx 10%, meaning 90% chance of no reoccurance. Hopefully I'll tolerate them ok.
Long weekend here in Darwin and we're heading off in the caravan for a few days 🥳
Have a nice weekend ladies! - cranky_grannyMemberHi all. I dont know about now but when i finished active treatment exactly 7 years ago. There was no ringing bells or anything after 6 weeks of rads my last one my daughter and granddaughter were there for pictures as i walked out the last time and they played acdc TNT. Then went for celebration lunch
hardly a nod from the staff. They are so busy in there that it’s like a conveyor belt. For such a big public teaching hospital there is only 3 treatment rooms for radiation in the cancer clinic - CoastiejasMemberThanks @Katie46, it's a great feeling alright!
The injection was not too bad in the scheme of all the awful stuff we have had done to us recently...🤪😝
I don't know if you had the injection the day after the AC chemo but it was a bit like that....perhaps slightly more painful but over in about 2 seconds. It is slightly tender on the injection site on my belly today but nothing I can't live with!
That sure is cold for Darwin and glad to hear you are feeling like your old self again....I hope to feel a bit better over the next few weeks. I'm told that the symptoms should peak in the next week from the radiation, and they have sent me home with a bag of tricks to deal with it hopefully!
Onwards and upwards again!! - Katie46MemberHooray @Coastiejas, congratulations 🔔🔔🔔🥳🥳 it's a great feeling!
How was the injection? I think I'll be getting something similar.
We had a cool morning here in Darwin 16°, and 13° overnight tonight, 🥶 for us. I went to yoga this morning and I'm feeling more and more like my old self. - CoastiejasMemberHi Ladies
I rang the bell today 🔔
Radiotherapy done and dusted ✔️ 👍
I sang "I'm on my way " The Proclaimers for the team and the waiting room then almost rang the bell off the wall!
The team were wearing party hats 🥳 and we all had a good laugh and sing and dance.
I had my first goserelin depot injection yesterday and start exemestane in about 5 weeks (after my second depot).
Hope everyone is going well and stay warm for those in the Southern States. - AlfieMemberYou need to hug each other.or sit close...
2 problems solved.... - RonaMemberI’m that “one friend “ who is cold all of the time ha ha. Just like a snake, looking for the warmest area always. One of my colleagues (younger than me) has hot flashes all of the time, I find myself giggling away whilst she is fanning away 😊.