Forum Discussion
Rona
2 years agoMember
Struggling through Chemo
Hi all,
My nurse has just introduced me to this group.
I’m hoping to connect and share my story and hopefully somehow feel better.
After being diagnosed and a short time later having a mastectomy and all lymph nodes removed, chemo started just before Christmas and I am struggling with it!
Ive got another 2 months of chemo before 5 weeks of Radiation…… would love to hear other stories.
I have a fantastic support group of family, friends and colleagues but they just can’t possibly understand what I’m going through.
My nurse has just introduced me to this group.
I’m hoping to connect and share my story and hopefully somehow feel better.
After being diagnosed and a short time later having a mastectomy and all lymph nodes removed, chemo started just before Christmas and I am struggling with it!
Ive got another 2 months of chemo before 5 weeks of Radiation…… would love to hear other stories.
I have a fantastic support group of family, friends and colleagues but they just can’t possibly understand what I’m going through.
Looking forward to connecting 😊
344 Replies
- Katie46MemberI rang the bell today @Rona! Chemo is done! I also had a CT for my radiation, and a couple of freckle tattoos.
- Paris_24Member@Rona good luck with the mapping and for the first rad session Tuesday. Love that your hair is fluffy and white. Glad to hear taxol is going to be easier than the AC. With the AC I could taste only chilli spicy stuff which is not really good for the mouth ulcer care. We keep joking I will likely end up with straight hair and white based on the fuzz when it grows back after all this, mine was long and curly what seems like ages ago now before the cancer.
- Katie46MemberOMG @Rona, white fluffy hair! Hopefully it will become more normal as it grows through. I often wonder what mine will be like, I was 50 when diagnosed, brownish hair and hardly any grey at all, just the odd sparkle, I was quite proud of that, oh how the mighty have fallen. My sister has beautiful silver hair, so I won't mind if it comes back like that, and worse case I can dye it. Did you get to the Chinese restaurant yet? My taste is almost normal again, and luckily I never had the strange taste. I know what you mean about the leg hair, quite honestly I be happy if it came back on my head, eyebrows and eyelashes and nowhere else, I feel like I've earned that 😆
- RonaMemberHey everyone, nice to hear from you all 😊. Sorry to hear you are still having trouble GorgyS, hopefully soon these times will be a distant memory. My count got down to 0.7 and my treatment stopped for a week (my last one 😩) and only recovered to 1.1 after a 2 week break, I wasn’t offered the injection either.Katie the finish line is near!! Have you inquired about “the bell”?? 😂. I have a great pic of me dressed as a witch ringing it.I have my Radiation mapping app on Monday then all systems go the following Tuesday.
Congratulations Paris, it’s tough going that AC, well done. The Paclitaxel is sooooo much easier to tolerate, really hope you manage it as well as me.
The fatigue was the hardest, along with that taste! But I’m thinking it may have been the AC wearing out of my system.My hair is starting to grow back……. pure white!!! I can’t believe it….. it’s fluffy and white! I had a dream the other night I had hairy legs 😂, not looking forward to them growing back 🙄.
Will let you know how my mapping app goes 😊 - Katie46MemberHi @GorgyS, glad to hear they went ahead with your treatment, it's really frustrating when you have to stop. I have one more to go, next Monday. My hair hasn't started growing, although I thought I saw a few little blond hairs, my husband isn't convinced 😆 probably just wishful thinking.
- GorgySMember@Katie46, great to hear that you have come to the end of your Taxol treatment. My WBC counts were good today, and I had my 7th Taxol dose. I asked my McGrath nurse about Neulasta, and she said it is not part of the Taxol treatment and is not covered under Medicare. So far, I have not had any serious side effects and doing Ok. My hair started growing back after the 6th Taxol infusion. After the last one and break of 3 weeks I will have a radiation for 3 weeks. I will also have tattoo dots for radiation.
- Katie46Member@Paris_24 I have my radiation set up appointment on 3 June. I'll be getting the tattoo version radiation. The tattoos are freckle size (the radiation oncologist had one on his hand to show me) and I have so many freckles and moles I won't notice a few more 😆 good luck with your paclitaxol, despite having a few side effects I found it better than AC and had more energy.
- Paris_24Member@Katie46 very exciting that you have made it through the chemo treatment, sending you celebration vibes for Monday. 🎉 I finished the big 4 AC’s and in two weeks time start the 12 weeks of Paclitaxol. Keen to hear how you, @rona and @Coastiejas go with the radiation phase and what comes next after that, there is always something hey. 😊
- Katie46MemberHi @GorgyS, I was only given Neulasta on AC, thankfully my white blood cells have been pretty stable, just slightly low but nothing to worry about. I did get my bloods done too early once, and the WBC were down a little too much, so the repeated on the day of chemo and they had picked up again. I have my last chemo treatment on Monday 🥳
- GorgySMemberHi all. I hope you keep going through the chemo treatment well despite many side effects. I'm just wondering if any of you who are on Taxol have been given Pegfilgrastim (Neulasta) injections to help fight infections that can arise from low white blood cell counts (WBC). My WBC was very low this week and my oncologist recommended postponing the infusion. As I am not happy with that especially I am on premedication to manage allergic reactions that I have already taken before the blood test results, I asked for the Neulasta as most of us was given it with AC. My oncologist wanted to try to check the blood for WBC today 30 minutes before Chemo and if it is above 1.00 I can go ahead. Will see today.