Hi @Maree72, what an awful journey you've had so far, hopefully the radiation treatment will be better.
@GorgyS hopefully they'll get your medication right for the next round. I was given medication to take home and take 1 hour before treatment. They gradually stopped the dexamethasone and antihistamines, but did tell me if I got a reaction they'd put me back on them. So far I've been fine, and I get round 8 on Monday. So glad other people sharing their experiences was helpful to you. The nurses did tell me it can happen any time, but more likely in the early sessions.
Hi @Afraser, the paclitaxel is giving me ulcers on my tongue, AC gave me oral thrush, I can't decide which is worse, but I think it's the ulcers 😔 I'm trying everything recommended, but at the moment I can't seem to shift them. In the grand scheme of side effects I've gotten off pretty lightly so I'll soldier on with the salt rince and talk to the nurses on Monday to see if they can give me anything stronger.
My fingernails are turning brown except for 1 on each hand, bizarrely, and I have an odd sensation in my fingertips but the only issue I have is anything with a ring pull, but that's also me being cautious and not wanting to damage my nails. They are keeping a close eye on it. My feet are totally fine. I have some minor rashes as well on my arm.
My taste has changed, a lot of things just taste sweet, or of not much at all. But strangely coffee which tasted awful on AC is one of the few things that now tastes tonally normal 🤷♀️
Only 5 sessions, or 4 weeks until I finish chemo 🥳