recently diagnosed with existing disability
Hi. Nearly 46 year old, no family history right side mass or masses (just under 5 cm). In a lymph node. possible issue left side. I also have cerebral palsy. I use an electric wheelchair. rely ver...
Forum Discussion
That’s tough. You have possibly a lot to think
about but, if at all possible, try and take things one step at a time. You need a complete diagnosis and your medical team in place. This will happen and then you are in a better position to discuss options and to know who
to discuss them with. Your independence is obviously very important and you need to make sure your team know that but there may be some occasions when some practical help
is useful and your team may be able to assist in accessing that help. I had virtually no experience of major medical treatment (or practitioners) prior to diagnosis but I suspect it’s hard to tell what’s more difficult, no experience or too much! As with any medical interaction, feeling comfortable and trusting in your relationship with key medicos is critical. You can always ask for a second opinion if uneasy. Worry about one step at a time, not the whole journey - you don’t have a road map yet. One step at a time can take you a long way. Best wishes.
about but, if at all possible, try and take things one step at a time. You need a complete diagnosis and your medical team in place. This will happen and then you are in a better position to discuss options and to know who
to discuss them with. Your independence is obviously very important and you need to make sure your team know that but there may be some occasions when some practical help
is useful and your team may be able to assist in accessing that help. I had virtually no experience of major medical treatment (or practitioners) prior to diagnosis but I suspect it’s hard to tell what’s more difficult, no experience or too much! As with any medical interaction, feeling comfortable and trusting in your relationship with key medicos is critical. You can always ask for a second opinion if uneasy. Worry about one step at a time, not the whole journey - you don’t have a road map yet. One step at a time can take you a long way. Best wishes.