Forum Discussion
Dawnc
8 years agoMember
Quality of Life or Quantity they asked me?
Hi all, I was quite set back by a hospital staff member calling me this morning to ask me some important questions regarding my three appointments at hospital tomorrow. First one 11am Radiation Dept. Next 2.45pm Post Op. my surgeon then again 4pm back at Radiation DeptI was first diagnosed in 2014, then again February 2018 another tumour grade 3 etc( can see my previous post) The question she asked me was. "Do I believe in quality of life as against quantity of life" It threw me as I took it to be as I was now 70 were they considering me to be past certain treatment and choosing more deserving or younger patients?
I did choose not to have any treatment after my first WLE in 2014. But surely because I chose that the first time some 4 years ago surely they dont expect me to go that route again as things are much much worse now.
My question to all you lovely ladies who have gone through this, or going through this. Is it rough to start at 70 should I consider milder treatment as I have seen both my mother & sister suffer terribly and still pass with no quality for the last couple of years of their lives. I really don't want to put my two daughters through this. Its a memory I have never forgotten seeing them go as they did. It could have been easier I know.
So sorry to ask such a serious question but I go in tomorrow for the final discussion with one of my daughters, I need some serious advice. Sadly I have a twin sister to think of as well. Thanks in advance love & hugs to all on here. Dawn x
I did choose not to have any treatment after my first WLE in 2014. But surely because I chose that the first time some 4 years ago surely they dont expect me to go that route again as things are much much worse now.
My question to all you lovely ladies who have gone through this, or going through this. Is it rough to start at 70 should I consider milder treatment as I have seen both my mother & sister suffer terribly and still pass with no quality for the last couple of years of their lives. I really don't want to put my two daughters through this. Its a memory I have never forgotten seeing them go as they did. It could have been easier I know.
So sorry to ask such a serious question but I go in tomorrow for the final discussion with one of my daughters, I need some serious advice. Sadly I have a twin sister to think of as well. Thanks in advance love & hugs to all on here. Dawn x
40 Replies
- Kiwi_AngelMember@Dawnc sounds like u r in for the long haul. Feel free to come here and laugh, cry or whinge. We have all done it and it has been a lifesaver for all of us. Big hugs xoxoxo
- DawncMember@magicmum, @iserbrown, @BlackWidow, @kmakm, @Sister, @steplightly, @Zoffiel, @Mira, @MoiraC, @poodlejules, @primek, @Irb_03, @PatsyN, @Brenda5 Thank you all for your lovely comments & advice I am blown away by friendlyness here on this site.
To say my day at PA hospital with my daughter yesterday was "scary" is an understatement but here goes. Treatment cycle is repeated every 21 days as follows; Day 1 Paclitaxel by drip into vein 3.5 hours with Trastuzumab. Day 8 & day 15 Paclitaxel by a drip into vein about 1.5 hours. This cycle to be repeated by 4 cycles.
Radiation then for 4 weeks once daily (week days only) With this I will continue to receive Trastuzumab by drip into vein once every 21 days for a further 13 cycles a total of twelve months (If I survive!)
My daughter & I were there from 10am to 5pm went to 3 appointments and drove home in a daze trying to take it all in. I had a cry was so tired & rung out had two pieces of toast with tomato sauce on then got on with reading info till 11pm.
Fell into bed slept till 5am But didnt get up till 7.30am
Showered, eggs for brekky then started ringing Electricity, Internet server, went to Post office. rang removalist organised my move for 7th June, rang my brother in ACT, my sister in ACT, my twin sister here in Brisbane told them the news and packed all day.
Scared, in a daze but getting on with LIFE not bloody going to look back ever, looking forward to the next 5 to 10 years & more weddings. Whats the alternative I say, lay down & die, HELL NO!
So ladies I no doubt will be on here in all forms of dissaray, sick, sorry, tired & a mess but here I will be till the finish line has been reached. Love to all my sisters here! PS having a Port put in sometime in next two weeks and it all starts in two weeks. - magicmumMemberI have asked myself this question many times should I have a recurrence. I haven't answered it yet.As I had minor side effects only from chemo/rads/adjuvant therapies I would pron choose to treat as I now have 4 grandchildren, and so much to want to live on for.
It's an almost impossible question - I think docs are sometimes being practical/unobservant, thoughtless even when they ask things cos they are asking them so many times to so many people. Not that they don't care, they prob just have to keep a professional distance in their minds else they'd go mad.I think your plan sounds good - I love making lists, it helps when things are laid out in front of you and you can really make an informed choice that is all yours.I wish you well, I wish you many more years feeling well. And joy and happiness with whatever you decide is right for you.xxxxxx - iserbrownMember@Dawnc hope you're doing okay! I would've thought a question like that over the phone could've been delivered in a way to suggest please put some thought into this as it's not an easy topic and then when you come in for your appointment and discussion you may have questions which will help you determine what is the best option.
Cold over the phone seems callous but then again this modern world!
I sat on a train yesterday observing people playing games on their smart phones. I thought what happened to being in the now and looking about, enjoying the scenery as we whizz pass and actually smiling at a fellow passenger - I must be getting old and cranky as I just don't get it! Oh well!
Anyhow I do hope your appointment goes well
Take care - BlackWidowMemberThis is a difficult question and the answer may be different depending on many things. Personally (I am near your age) I would opt for the lesser treatments (if any) as I am alone in this world with no supports. For family members to watch someone suffering is often as bad as going through it. Making a list and then popping it aside for a while is the best thing to do. Talk to family, talk to medicos then make your own decision for YOU. As long as you never regret your decision it is the right one. @Dawnc please let us know how you get on. Anne
- Brenda5MemberDads oncologist just before Christmas became very candid with dad saying the bone cancer is taking over. Dad was not impressed and immediately asked for a psychologist. I think the psychologist had a quiet word to the oncologist when he got back from Christmas as he was a different man when he saw dad next and a plan was hatched to have a new sort of chemo. Yes it has risks. Yes there are side effects, some not yet known. Yes they overdosed dad on the first dose of chemo but they got it right now and he is hardly sick at all. Just a bit tired for a few days and then he comes good. Dad has now planted himself a couple of veg gardens. I love his snow peas. Dad is 78 now.
- PatsyNMemberI'm definitely a quality over quantity kinda person but aren't we all? It's knowing when one outweighs the other that makes it tricky. A crystal ball is what is needed.
- lrb_03MemberAlso remember, @Dawnc, that you don't have to decide tomorrow. Get all the information you can and think about it for a few days.
- primekMemberI have a friend who had full active treatment at 74. She us fit and well again and off carvaning with her hubby. Not having treatment was never considered. However her regime was slightly different from mine despite same type of cancer and similar size. They were looking at 10 year survivals etc and heart risks.
- poodlejulesMember@Dawnc you sound like an awesome mum. Good luck with it all. x