Forum Discussion
Marycipk
4 years agoMember
Post surgery
I’m 66 and a paraplegic. Just been diagnosed and having a mastectomy in 2 days time. I’ve decided to go for bilateral if she agrees and there’s enough time in the theatre but I want to know how much can you use your arms after surgery? I’ve got good support and want to get it over and done with. Love to hear from anyone how much you are allowed to move your arms
38 Replies
- MarycipkMemberWhat is ADLS? I have ndis.
- TonyaMMemberHi @Marycipk, I’m so glad you got through surgery and now back home.
Those dark thoughts are worse at night- a warm drink and a good book for distraction? That’s a good sign that only one node was removed.The waiting is hard for sure- just keep busy or distracted.You are at the scary part of this crap journey. You’ll feel abit better when your pathology is through and a plan is in place.Hang in there hun.xx - Having mentioned you are a paraplegic, it could also be a good time to seek assistance with any extra help/support with ADLs you may require. You are probably across that already, but don't hesitate to speak with the breast care nurse, or social worker and they can put in a referral for you for specialised services. Take care, and rest well.
- June1952MemberGood to hear that you are home and pain-free @Marycipk. Take things easy and accept any help offered. This time is all about YOU. The waiting is awful but the comments above are spot-on - access the BC nurse and don't wait to attend to the dark thoughts. Thinking of you. 💖💜💖
- Cath62MemberWell done @Marycipk. It does all happen quickly. I had surgery 2 weeks after my diagnosis, 2 weeks later chemo and 3 wks after chemo I had radium and then hormone suppression.
Pathology is helpful for determining treatment so it will be good to get those results. Remember treatment is so good now. Sounds like you have a good surgeon and oncologist. Wishing you a very speedy recovery. Take it easy and be kind to yourself. - arpieMemberTerrific that you are home and not in pain @Marycipk! Well done YOU xx Make haste slowly .....
All the best for your pathology results - the waiting really sucks! :( My Her2 results were the last to come back in - negative. Try not to get ahead of yourself .... and DON'T use Dr Google! A lot of the info is old & obsolete & isn't relative to your diagnosis! Plus it can scare the pants off you! xx
Have they assigned a Breast Care Nurse to you yet - you can put ANY question past them including chatting about dark thoughts, if they become a problem? xx Do you have a buddy to attend your appointments with you, as a 2nd set of ears (and support?)
take care - MarycipkMemberAmazing. I was diagnosed 2 weeks ago today
- MarycipkMemberThat's reassuring. I'm confused by the HER bit. I'm hormone negative
- Pleased to hear you are home and not experiencing any pain @Marycipk . Understand the waiting is hard to get the results. Hopefully just needing to have one node removed is a good sign and that you will be HER2 negative. The wait is tough, totally! For me I was rather exhausted keeping up with everything at home, and attending to my drains, so that helped me keep my mind a little distracted somewhat. All the best for good results. xx
- AfraserMemberGood result, well done. Only one node removed is usually a good sign, the tendency is to err more on more than less! Think positive, trust your surgeon, best wishes for the next stage.