Hi Nads, Feeling overwhelmed is totally normal, there are still times when I feel like this when a new issue arrives. It will be very helpful if Toni can go with you on the medical visits. I found that I had no choice once this ride started, things were just out of my hands, but feel for our families who are watching us go through this, but they are dealing with this from a different perspective. I found the "My Journey Kit" invaluable to keep track of appointments, questions and costs.
The nights and quiet times are the worst, but this is normal and I shed many tears when no one was around. All I can really say is to take each step as it comes and sometimes they may seem very small and to look after yourself..
All the best Michelle