Forum Discussion
34 Replies
- MantisMemberSorry about your diagnosis @Shellshocked2018_
I’m also triple negative and was diagnosed at the beginning of August. I’m having similar treatment as what has been suggested for you. I’ve had surgery, am currently in the middle of chemo and will have radiation once chemo is finished.
I was also terrified and overwhelmed in the beginning but found that once I knew what the treatment plan was I felt more in control. I found the Cancer Council Podcasts ’The Thing About Cancer’ to be really helpful, particularly the Dealing with a Cancer Diagnosis episode.
Hang in there. You’ll have ups and downs but reach out in here when you need support. There’s always someone who gets it xxx - Thanks kmakm will take a look at the thread.
will read your story and talk - kmakmMemberHi @Shellshocked2018_. So sorry that you find yourself here. You're in the middle of a truly shitty time, the worst bit really. Take some deep breaths when you feel overwhelmed, and distract yourself as best as you're able.
You might like to have a look at this thread which was started a few months ago by one of our members with TNBC:
https://onlinenetwork.bcna.org.au/discussion/19397/triple-negative/p1
I was diagnosed almost a year ago now. Hormone positive. Click on my @ to read a summary of my story. For the first 10 days I was so angry, and then I started to cry and continued for a month... You let your feelings out, it's no use bottling them up. It is a comprehensive shock this diagnosis. Don't fight that. But know that you can manage. Hang in there. Big hug, K xox - Thanks arpie, yes keeping busy is helping, when I sit still I think to much.
When I first went into Breast SA for results and they told me I had breast cancer, I came out very upset and confident that they have caught it early, but after speaking to surgeon I’m in more shock as things were not what they appeared when first told. So it’s like I have just been told again and I’m in shock - CathyMacMember@Shellshocked2018 great that you have your plan and date for surgery. Feel free to PM about my friend. She's been a pillar of strength for me and has been popping in to check on me. Big hugs. Stay strong, we've got this ❤️❤️
- arpieMemberI was lucky and missed out on the chemo .... being small and caught early (unusual for invasive lobular cancer) and was oest and prog+, but her2- .... so I had breast conserving surgery (immediate reconstruction) followed up by 4 weeks radiation. I was 64 and already in menopause and now on hormone inhibitors for 5 years.
If you want to check out some thing special ... there is a uke festival in Fleurieu in Willunga this weekend!! It is the best fun you can have sitting down! I lead our local group and it saved me from going mad over the last 12 months! ;)
I reckon that keeping busy is really important in helping you thru all this shit ... ie doing things you love. ;)
All the best for next week’s tests xx
- CathyMac, I’m so sorry for your diagnosis, this is such a hard time for us all.
Already visited surgeon on Thursday, booked in for bone scan and CT on Monday.
Booked in for surgery December 19th, Chemo and radiotherapy booked in for after surgery depending on outcome, treatment could change.
would love to hear more about your friend that also has the same as me triple negative as I’m just so stressed about it all - Kitkatb, thank you for your support, it’s nice to speak with someone who has been diagnosed with a triple negative.
Original results were a 15 mm size quite deep under the armpit behind the nipple.
Original result said that there was no evidence that there was any cells in the lymph nodes, this screening was done around 4 weeks ago. I’m just so scared being a triple negative being told it’s fast growing.
surgery booked for December 19th for partial mastectomy, Chemotherapy after for 6 months, then reform 4-6 weeks.
Early next week have bone scan and CT, depending on results things may change.
Feelins so anxious, unable to sleep and so scared - Hi Wonk, surgery is booked for December 19th for a partial mastectomy,the plan so far is surgery first, Chemotherapy for six months having it every three weeks, then Radiotherapy 4-6 weeks , five days a week.
As I’m aware this may all change very quickly once I’ve had my bone and CT scan done next week if it shows up anything else.
Also depending on what happens with the results from surgery whether it has a clear margin? - CathyMacMember@Shellshocked2018 I became a member of this forum on Friday last week with my diagnosis on the 8th Nov.. I'm playing the waiting game too. I have all my scans booked for Tuesday and an appointment with my surgeon on the 23rd Nov. I'm looking forward to being able to move forward when I know exactly what I'm dealing with. I have 2 friends in my immediate friendship group who have traversed this breast cancer path and one with triple negative breast cancer and she's been amazing with all her advice. Sorry you had to join this group too. Sending you big hugs and much love ❤️❤️