Forum Discussion
34 Replies
- kitkatbMemberHi @Shellshocked2018_ We are all here for you. Maybe you could tell us a little about yourself and what type of surgery you will be having. As the ladies have mentioned we have all gone through what you are feeling now. They are words which change your life for ever. It is great that the ball is rolling and you have some idea of what is planned by your team already. I also had triple negative cancer . This year I had 2 surgeries, lumpectomy then a re excision , they then decided on my chemo next and lastly I had a mastectomy 4 weeks ago. You will find so much support in this forum and as Arpie mentioned take a deep breath and do what you can to take your mind off things. Big hugs xx
- WonkMemberHi @Shellshocked2018_ thank you for your kind thoughts. You are going to be overwhelmed with information at this point. Stay away from Google and stick to the information the breast clinic and surgeon has given you. Everyone’s diagnosis is different and every treatment plan unique. For me I had a choice of mastectomy or lumpectomy with a sentinel node biopsy. This will be followed up by radiation in a month. But is all dependent on what the pathology results show from the operation.
When is your surgery booked for? This is the first step to focus on. Lots of hugs 🤗 - Thanks arpie, will send them a message
- Hi wonk, I’m sorry about your diagnosis, hope you are recovering well. May I ask what surgery you had? Has your treatment plan been put in place and what sort of treatment are you going to have
- arpieMemberWe have a few SA members who may be able to help you with suggestions re treatment and services in SA ..... @Sister and @Romla
It is always good to have local knowledge!! ;). - I live in SA on Fleurieu Peninsula.
Sending prayers your way for a good outcome.
How are you feeling after your treatment? - arpieMemberI am feeling positive ... It is what it is!
I have my 12 month checks next week ... I try to keep myself busy most of the time to stop the mind from playing tricks on me. It took 2 months from detection to surgery for me (being rural NSW) so that meant a LOT of kayak fishing and ukulele playing for me, most days! LOL
What area are you (roughly.). We may have members near you who may be able to help you with nearby services. ;)
There will be a bunch of replies here soon, to help you thru these first steps .... just be kind to yourself, slow down, deep breaths .... and accept any help from anyone that offers! Xxx - WonkMemberHi @Shellshocked2018_ so sorry you found yourself here but you are in the absolute best place for support. I was exactly where you are 9 days ago. In that time I’ve already had my surgery and am now home. The ladies on this forum have been what has got me through the first few days of overwhelming despair. I still can’t accept the diagnosis, but in this forum you don’t have to put on a brave face. You will meet amazing women who will help you every day. We are all here for you xxx
- Thanks arpie, husband will be coming to all appointments. I’m trying to stay positive and I will fight this with all I have.
Needing so much reassurance.
How are you feeling now after 12 months - arpieMemberIt was 12 months this week since my own detection .... so I remember it well. :(
The meltdowns will continue to happen now and then .... small speed humps along the way and sometimes for no real reason ... This bloody BC mucks with our mind bigtime, damn it!
Big hugs coming your way ..... when you go to your next appointments, see if you can take a trusted buddy with you to listen in as a 2nd set of ears (and support!). Or at least record it on your phone as backup. It is difficult to take in all that is being said in the early days.
All the best. Xxx
The sleep issue is very common, sadly .... we try physical exercise, Melatonin, temase, ear plugs, eye masks and many other things to try and beat it ..... check out our Night Howls thread .... there is usually folk online most hours of the early morning to chat with!!