Newly Diagnosed

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Hi @Sister my doctor/surgeon dosen't do much at all and won't listen to any of my suggestions, so am trying to do this by myself which is very difficult but i keep moving forward and looking.  As I am a nurse I don't do random searches so I suppose that is an advantage but there is only so much I know and hit alot of brick walls. xx

Hi @Brenda5 thanks for the information and I have been reading the articles you sent.  Some do relate and been going over the bloods that were taken when I had the auto immune test done all were negative, even all my white and red blood counts where normal.  I would be covered on PBS as I am on disability.  I will take the first article to my surgeon on Friday but he will probably say it isn't as I suggested to see a vascular surgeon before and he laughed at me.  It is hard to get any referrals in the public system.  I have also seen a Infectious Disease doc but have no infections so it makes it very hard.
Love all the help and positive comments on here. xx

@shann - Im so sorry that you are still having these problems - you must be getting so frustrated.  Sending you the hugest of hugs xoxoxoox

Hi @shann, I have been following your posts and wishing all will heal but it doesn't seem to be healing right. I am thinking autoimmune disease as well and found 3 links which may help. You would need to see an oncologist and maybe to get it via pbs system, lie a little by your doctors and say its arthritis treatment? Just trying to think outside the box. <3
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5319730/

https://www.gene.com/patients/medicines/rituxan-oncology

https://www.humanservices.gov.au/organisations/health-professionals/enablers/rheumatoid-arthritis

Bugger sorry think I should have written @shann so you know I wrote to you.Sorry.

PS I understand it must be  100% pure aloe Vera GEL not the juice - there are a lot of details on the Herbs app which has information for professionals and patients. I have read on here that many doctors also consult this site.

Now this may be a completely wild idea but like to relay a story.Many years ago I attended  a farewell party and one of the guests was a farmer well into his 60s from the Mallee who had had a major tractor accident. He told me he had been hospitalised at our major teaching hospital months because of an open wound that would not heal.

He had been discharged with a still open wound. He started to his own hw - not easy in those pre internet days - and read about 100% pure aloe Vera and it’s healing properties. He used this product and found his wound healed up - he believed it was because of the aloe Vera.

Every summer we caravan at the beach for a month - the first really hot day my kids get burnt badly .I apply 100% aloe Vera to their skin and overnight their burn eases substantially.

I do not advocate using anything without consulting medical staff first.Also there is a mobile phone app many of us use called Herbs - it’s free and created by a NY Cancer hospital.It is recommended by BCNA also.The site reviews all supplements- vitamins , minerals and herbals - might be worth looking up aloe Vera on it. Here is the web address

www.mskcc.org/cancer-care/patient-education//herbal- remedies-and-treatment

I only relay this as I have never forgotten how happy an old bush cocky farmer was with 100% pure aloe Vera for his open wound problem.

Aloe Vera is a type of succulent/ cactus - there are many products around that have the name on the packaging but not all are 100% nor I’d guess pure.If you do decide to try it purchase it from a pharmacy as it is more likely to be pure and make sure it is only 100% aloe Vera - no other ingredients.

Hope this might help.xo

Sometimes the answers do come from international sources - we just don't have the population to reflect rarer reactions. Is your doctor willing to canvas specialists?

Hi
To @primek and @Joannie.  I don't have diabetes and I have also been to a immunologist and had many blood testing for immune diseases as it was one of my first thoughts as well.  Also been to a naturopath and been on added vitimins and minerals for about 6 months now.  I will not be having any treatment especially chemo as I am now completely out of the window.  I have no infection or bacteria this is being tested all the time.  The can't believe how clean the wound is.  They just tell me that they have never seen this before and have no answers.  Need to find a dr outside of australia I think nothing seems to be looked at in this country.  Can't go any higher than the surgeon I see as he is the head man (apparently).  I also don't have any other hospitals near me, the next closest is an hour away and then I would have to find transport etc and I have no private health or money to do anything.  Thank you for your suggestions. xx