Forum Discussion
skitzy
10 years agoMember
NEWLY DIAGNOSED
Hi all
What a shock when I got called back after a routine mammogram, I had to go to Nambour where they did an ultrasound & 2 core biopsies, they told me I would have a good idea before going home if it was cancer.
There in the waiting room other ladies had their names called for results, but when my name was called the DR actually said to my husband "would you like to come too" as you can imagine it could have only been bad news. As we entered the room the DR said "you already know don't you". my reply was I guessed as nobody else's husband was called in.
I was diagnosed with a 2.2 CM invasive lobular carcinoma & told to return the following Monday, it was then I received the green folder with information for myself our GP & the surgeon.
I am due to have a bone & body scan on the 27TH Jan with a mastectomy on the 10TH February.
What a great support this BCNA website is with all the information available & the other ladies who have or are going through this journey too.
16 Replies
- skitzyMember
Hi KJ
Many thanks for the warm welcome. I have to say it's this site & the amazing ladies on it along with my family that is keeping me sane.
I am sorry to hear that you heard your bad news on your own it must have been awful for you.
I was supposed to have a lumpectomy, but with it being an invasive type the surgeon suggested a mastectomy would be better.
I will be thinking about you & wish you well. xx
- skitzyMember
Thank you for the good advice Karen I am trying to remain positive. All the best to you. xx
- K_J_Member
Hi Eileen. Welcome to the worst club in SEQ... Sorry you had to join us but now that you are here, welcome to a pretty amazing sisterhood.
I got my diagnosis in November (I was on my own because I thought I was ok!) and after a lumpectomy, subsequent mastectomy and my first round of chemo, I still don't believe it's happening.
You will have good days and bad days and you will have to learn to be REALLY nice to yourself but if you just keep putting one foot in front of the other you will eventually get to the end.
I am lucky that I have a great support network and excellent medical team but it's the ladies on this site that have got me through some of my worst days. Stay in touch with us, don't be frightened to ask questions, put on your war face, baby and get ready for the fight!
We will all be here every step of the way xo
- Cook65Member
Hi there
Welcome to the site but sorry you have had to join us. It is a shock and a roller coaster ride. It is surreal. Take each day and each appointment one day at a time. Ask lots of questions to your health professionals and take someone with you to your appointments if you can. And just remember you will get through this. All the best with it all. Karen xox
- skitzyMember
Thank you Brenda I am just happy that you ladies are such a big comfort to me & I have just said to my husband what a blessing this site is & how much better it makes you feel.
- Brenda5Member
Sorry to hear you have joined us Eileen but we aren't such a bad bunch really and we're good company. My initial reaction on the surface was shock but underneath was a seething anger how dare this happen to me. Its ok to scream at the world in here. We're with you.
- skitzyMember
Thanks Nadine
I feel a bit better about the scans after reading your post. So glad to hear that your tumour had not spread. Wishing you well.
Eileen
- NadiMember
Hi Eileen
The scans were time consuming because they need to give you stuff beforehand but fine. For the CT scan they had me drink about a litre of fluid an hour before the scan. No big deal. For the other I had an injection which I didn't even feel. For the bone scan they put you on a table then they position a plate close to the different parts of your body and you breathe normally. Both were pretty straight forward and took about half an hour if I am remembering correctly. I found it was good for me to know the results of these before I had surgery as we then knew what we are dealing with right up front. My tumour was 1.9mm and scans showed that because of the size it hadn't spread to anywhere else in the body which was a relief. Funnily enough the scans also highlighted all the arthritis I had in my body! Now I know what I had such sore elbows! Good luck with it all. All the best.
Nadine
- skitzyMember
Hi Nadine
Thank you for the warm welcome.
Being on your own when diagnosed must have been really hard for you & I am glad that you now have support. I will also be sending positive thoughts & prayers for you both & for all the other ladies on this site.
How did you find the scans?
Eileen
- skitzyMember
Hi Donna
I must admit I am not looking forward to the bone & body scans, I hate confined spaces. The breast cancer people at Nambour said mine would be a WLE with SNR too. But when I saw the surgeon he thought a mastectomy would be the best option for me. Wishing you well for your journey.