Newly diagnosed

Hi,

I too have bone mets diagnosed in may 13. I take femara tablet daily and have xgeva injection monthly. I excersize daily eat well and generally feel good. I work and still do all the things i used too. Yes I worry yes i wish i di nt have it but I cant change it. I hear amazing stories of longevity with bone only meys this so lets just hope it happems for us too. Cheers and hang in there

Wow Lynne,

What a story of postivity and endurance! You are a positive role model.  As you said - stay positive as much as possible and treat the diagnosis as a small step on a longer journey.  I was recently on an abraxane trial for early stage breast cancer, and it whipped a very large area of malignancy. 

Good luck for the rest of your journey. Dorothy

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Hello Glynnis, I was diagnosed with breast cancer in April 2011. Tests proved that it was in my spine in several places, pelvis and left femur. The tumour had already spread into my chest wall so was inoperable. I thought that I was going to die soon and was very scared!

I was given 6 months of chemo which brought everything under control and stable. For the next two years I just took a daily Arimidex tablet. I retired from work, renovated my house and travelled to South America and Turkey. In 2013, I had 15 doses of radiation on the tumour as it had started to grow. that knocked it back into control so I travelled around Morocco and France. In July 2014, the CT scan showd some mets in my liver so I was put on chemo again. Another 6 months of Abraxane which again has got it under control. My oncologist has said that I can plan my next holiday which will be Greece in September.

It is almost 4 years since that first horrible diagnosis. All the things I worried about, pain, disability, death, have not come true. I enjoy my life. I deliver for Meals On Wheels each week, still sing in a choir and attend classes with U3A, walk my dog twice a day and go to yoga every week. Most of the time life is normal. When on chemo I get more tired than usual but not enough to stop me doing things. I make sure that I eat healthily and that I have some daily exercise. I try to make sure that I have a good nights sleep every night. I spend time with family and friends and try to be positive. This diagnosis is scary but not an immediate death sentence. Have hope for the future and be as positive as you can. 

Good luck, Lynne

Thankyou Dorothy we are all in the same boat are we not,  I am thankful that there are people on here to chat to about what is happening to me and get there thoughts on things I hope you are well now Dorothy good luck with all your future treatments

Dear Glynnis,

Your journey has begun. I was diagnosed in June last year, and had chemo first for 24 weeks before my surgery on 9th january and reduction on the other side.  I am so sorry to hear that your cancer seems to have metatised, but chemo can do wonders. My cancer was very large and multifocal and in my lymph nodes before chemo, but after chemo, there was only one small spot left and no lymph nodes affected.  Chemo is not nice but with a positive attitude you can do it.  One tip - take each day as it comes, for each day is blessing in itself.

Good luck with your future treatment.