Forum Discussion
nonkyboy
9 years agoMember
Newly diagnosed today and feeling shattered.
Hi ladies, I have been hovering around these pages for a few days while waiting for my biopsy results to come in and hoping I could leave as quietly as I came. Unfortunately I am joining the group. My pathology report reads as follows:
The core biopsies of breast tissue show invasive ductile carcinoma NOS with foci of intermediate and high grade ductal carcinoma in situ. Invasive carcinoma comprises moderately pleomorphic cells with focal tubal formation associated with desmoplastic stroma. Mitotic figures are infrequently identified. Grading is suboptimal on core biopsies; however, the appearances are of a grade 2 carcinoma ( tubules 3/3, nuclei 2/3, mitosis 1/3). There is lobular involvement. Myoepithelial markers (p63,SMMHC) confirm the presence of myoepithelial cells around the lobules and areas of of carcinoma in situ. Carcinoma in situ shows cribriform and solid patterns. There is no vascular invasion in these section.
HORMONE RECEPTOR STUDIES
OESTROGEN RECEPTOR - Positve
% positive nuclear staining - >95%
Intensity of nuclear staining - 3+(strong)
PROGESTERONE RECEPTOR - Positive
% positive nuclear staining - >95%
Intensity of nuclear staining - 3+ (strong)
HER2 OVEREXPRESSION
HER2 ( Vantana 4B5 ) - Equivocal
Membrane staining score 2+ (>10% weak/moderate incomplete membrane staining)
Comment - INVASIVE DUCTAL CARCINOMA AND DUCTAL CARCINOMA IN SITU
I SEE THE BREAST SURGEON IN 6 days and was wondering if any of you ladies would have ideas on what she may suggest as treatment and also what questions I should have ready to ask her. I'm 53yo and perimenopausal. I have beaten thyroid cancer and I will tackle this too. I am raising my three young grandchildren who are aged 16/12, 2yrs and 2 months and the eldest just turned 3years.
54 Replies
- steplightlyMemberAll the best for today nonkyboy. I hope you have had a decent rest overnight and the mindgames have stayed in check. The 'waiting' in each step is as challenging as the process and hopefully today you will get as clearer picture as possible. Glad your sister is with you and the tape recorder is a brilliant idea. So many words, unfamiliar phrases etc and while they try to explain I found I closed off the further it went, not through denial, but literal inability to continue absorb. You are in my thoughts and prayers.. stay in hope xo
- nonkyboyMemberThanks Romia. The kit arrived this afternoon so I have been having a good read
- RomlaMemberIn your kit is a journal which you could diarise visits I too have poor memory. Lots more info on bcna site too. Hoping all goes well - am here if you need me as are many others you are not alone xo
- nonkyboyMemberThanks Steplightly, Still a battle in front of you but hopefully one that you will come out of at the other end feeling positive about. I will have more info tomorrow and hopefully a plan in place which will make me feel better. Please take care of you x
- nonkyboyMemberHi Romla, thanks for your thoughts. My kit arrived today so I had a good read this afternoon. I see the bs tomorrow and will then know some of what I'm facing. Less than 24 hours to go now until I see her. I have my sister coming with me as a second pair of ears and I am also bringing along a voice recorder as I have a terrible memory due to my thyroid condition.
- RomlaMemberDear nonkyboy there's much support and wise guidance on this site.There will also be much on your journey from those who will be helping you along the way. I felt cocooned by kindness thru diagnosis , surgery and radiotherapy - the bcna kit was a good start for me as information allayed some of my fears. At this moment for me the greatest support is talking and reading about others in the same boat and knowing I'm not alone hence this online chat is a lifeline.Many women have and are taking this journey with us and are continuing to live happy lives afterwards and that I need to remember when I get down.As regards treatment until the biopsy is done after surgery nothing is definitive .I had lobular cancer grade 2 and er+ similar to your own - I had a lumpectomy with a sentinel biopsy followed by another op to widen the surgical margin because of what the post op biopsy revealed and it was clear then radiotherapy which is to be followed by hormone therapy soon - aromatase inhibitors for 5 years.I did not have to have chemotherapy as they believe it was contained to the breast and had not spread.As I have osteoporosis and AIs cause fractures I also need a bone builder like prolia. I am 63 post menopausal and still have kids at home twin boys aged 16.
- steplightlyMemberThanks Brenda5 It is very early still for me Hope you are travelling ok and nonkyboy is getting everything she needs
- Brenda5MemberWelcome @steplightly. Sounds like you are progressing in treatment well. Keep strong. <3
- steplightlyMemberHi everyone. Have just joined this morning. I was diagnosed with IDC in May and through Breast Screen ultimately went through every machine in their building. My mammogram in April showed a large cyst which needed aspirating. While having ultrasound came this from the sonographer "Oh what's that"? She left the room and returned with another person. Roll, slide, glide. "Hmmmm" Ok .."We need to aspirate the Cyst however need to do a biopsy on this other area" "So this looks different to the cyst"? Response "Yes". This is where I go into shock and get a bit shaken. Biopsy done and results in 1 week later. Also small discharge during mammogram put on slide for investigation. Day of results - another biopsy on my already bruised breast. due to calcification seen and wanting to make sure nothing else there. This time through the mammogram machine.. It seems I am a "surprise bag" as my tumour was not seen on mammogram nor was it palpable. All the initial specialists and the treating surgeon are surprised. Results - discharge clear, calcification clear, contents of cyst clear.... IDC in the tumour they found under ultrasound. I have since had surgery to remove the tumour, 5 lymph nodes removed and am still recovering. Results came back yesterday - 0 lymph nodes positive. Small Invasive Tumour and all margins clear. I am thankful that God granted me. in the midst of all of the tests, diagnosis and surgery, the strength to stay relatively calm. Surprised - absolutely, questioning - that is a given. But most of all encouraged by all the support and prayers of those who know what is happening. It is literally a day at a time. It is something I have no control over. It isn't my fault. I am now waiting on discussion of treatment plan. I try to stay positive and focused, I know it was there. I know it has been removed, I know that I am very thankful for the keen eye of the sonographer in finding "the invisible" I want to encourage you nonkyboy on your courage to share after "hovering", hoping you find a source of comfort through -the people here who seek to support you, the team working with you to find a path through this quagmire, and knowing you are braver than you think, stronger than you seem and are loved more than you know... be kind to you in your unique journey in this new devastating and challenging space. big hugs
- iserbrownMemberIt will be your go to along with the breast care nurse
Take care