Forum Discussion
Shimmer78
9 years agoMember
Newly diagnosed Mum with kids.
Hi all, Diagnosed on 14th Aug with Grade 3 Invasive Carcinoma...surgery on the 20th - lumpectomy and removal of sentinal node...only just wrapping my head around it all. Starting to all seem real now.
Just wondering if any of you have young children and how did you tell them and how much did you tell them? Son 8 (& quite smart) Daughter almost 6. Any advise will be appreciated.
Just wondering if any of you have young children and how did you tell them and how much did you tell them? Son 8 (& quite smart) Daughter almost 6. Any advise will be appreciated.
26 Replies
- TripleTeaMember@Shimmer78
yes it was all very quick. Diagnosis Thursday afternoon, bone & CT scans the next day(Fri) and then surgery 8am Monday morning. Being grade 3/Triple negative I think they were expecting it to have spread. My GP obviously thought that telling me we didn't get it early - Shimmer78Member@ Aussiegirl19
It's awesome that you can hire wigs. Don't think there is anywhere here in Bundaberg that offers that - apparantly a really good one at Sunshine Coast. Thanks for all your advice. Hoping your day was relaxing xx I have my Surgery tomorrow - Shimmer78MemberHi @Melsie97
Love the idea of the wonderwoman scarf....and I am sure my kids would too - Shimmer78MemberHi @TripleTea Your surgery was soo quick - wouldn't have even had time to process. My kids seem to be doing OK. My 8 year old is full of questions. ...new ones everyday. I am estrogen+ only. So they say that's a good thing. Hormone treatment for 5 years after whatever else may come.
Hard to tell with teenagers what is going on in their heads - I have a few close teenage neices and nephews and they all so very caring and supportive. - Melsie97MemberHi @Shimmer78.
I was diagnosed the day before my 40th Birthday last year and have two boys aged 11 and 9 (now 12 and almost 10). We were very upfront with the boys and have been through it all.
I had a Left Total Mastectomy (looking at Reconstruction next year.
Ive been through Chemo, Radio and continuing with Herceptin until the end of November.
We all have had a good cry many times and my 9 year old is a almost permanent fixture to my side.
I shaved my hair off when my son came back from his year 5 camp and bought Pokemon and Wonder Women scarves (with their help) to make it a bit easier. I couldn't do a wig. At home, I just rocked the bald look.
I also let their teachers and principle know just to give them the heads up and give them any support the need.
If I can offer anymore advice or support, let me know. Mel xx - Aussiegirl19MemberHi Shimmer78 We're on school holidays too and my boy's had a bad start to his break as he threw up everywhere in the early hours of the morning which was awful especially as today is chemo day so I couldn't cuddle him or with help with anything. I'm actually writing this to you as I have my second chemo treatment to pass the time. I'm 47 so a bit older than you but still classed as a young sufferer I believe. I'm having four chemo rounds (every three weeks) followed by six weeks of radiation (Monday to Friday). I live in Brisbane so am planning to visit the Choices program at the Wesley Hospital where I'm being treated this afternoon provided I finish treatment in time to hire one of their wigs. I have a number of cotton turbans I bought from them before chemo in preparation and had a few suitable scarves already. I have also bought a multitude of different hats to wear as well. Kmart especially had a few trendy hats at reasonable prices so I got those too. My son has taken it really well finding it more funny than anything. He did tell me I looked a bit like a man. LOL! I must say I now look the spitting image of my younger brother who is actually bald so I can't blame him for saying that. I'm probably lucky as I had short hair anyway so it wasn't as confronting perhaps as having to lose long hair. I still have the stubble on top at the moment but that will fall out apparently at some stage. My son told me Saturday night and yesterday to take off my turban as I looked warm. I spent most of yesterday without anything on my head as it was a warm day and he didn't seem to even notice it. I guess it's just a case of everyone, yourself included, getting used to things. I haven't lost my eyebrows or eyelashes yet so that might change things as to how everyone feels but we'll have to wait and see. Good luck with it all and keep in touch.
- TripleTeaMemberHi @Shimmer78. I was diagnosed on 10th August so just a few days before you. Invasive, grade 3 and also 39yrs old. Unfortunately mine is also triple negative. I had a lumpectomy on 14th of August and see the oncologist in 2 days to find out my chemotherapy regime.
I have 2 kids but they are 18 & 15. My son(18) is at Uni 2hrs away. My daughter, 15, has been great and is a wonderful support but I worry she is bottling it up trying to be strong for me. Luckily at that age they have good friends to lean on too.
Good luck with the kids, they are more resilient than we realise sometimes and I'm sure your little girl will love trying pretty scarves and hats on mummy if you do end up needing chemo. Keep in touch with us all about what treatment plan you have coming up. Tracy - Shimmer78MemberHi Aussiegirl19, We are on school holidays now but did think that it would be a good idea to discuss with teacher (my boy also has 2 teachers - job sharing). Just so they can keep an eye them also. Will do this straight after hols. Great idea about back up for pick ups!
Not sure about further treatment yet but my Breast care Nurse and GP both say chemo & radiation because of my age (39) and because I have previously had a Melanoma (removed with clear margins) no further treatment needed. Will keep you updated.
You said earlier you have shaved your head - have you found a good wig/scarf or are you embracing the new look. A little concerned if my 6y daughter will handle Mummy with no hair. She is very much a princess. - Aussiegirl19MemberYou're welcome Shimmer78. That's one of the hard parts over now. Am glad it went well for you. There will be moments of sadness but also beautiful moments that will warm your heart. Kids are a lot more resilient than we sometimes give them credit for. One extra thing I thought of since I posted my earlier response was about whether you had any discussions with your kid's teachers? My son has two teachers (they job share) so I sent them an email and then had a short face to face discussion with them so they were aware of things and could give my son extra support at school if he needed it. Thankfully he seems to be coping not too badly. The other thing I did was enlist the help of my wonderful school mum friends who were eager to help me. I have them as back-ups for school pick up time especially in case I don't made it back from any of the medical appointments on time. I've only had to impose on them once for about an hour and put them on standby another time but it was a huge relief to have that back up. Do you have to have any further treatment? Please let me know down the track about how things are working out for you as worrying about our kids is one of the hardest things about everything isn't it? I'm know all us mums feel the same no matter their age but it's extra hard I reckon when they're only little. Take care!
- Shimmer78MemberHi aussiegirl19 . Thanks for the reply. We told the kids yesterday. Went more in depth with the 8 year old and he seems to be oK....so far. He had a few questions mainly about the surgery. Found a good app for the ipad from camp quality which we both played around with for awhile and he is reading one of the comics from cancer council. I am sure there will be many more questions that they have along the journey. The almost 6 year old has moments of sadness where she needs to give me a cuddle