Newly diagnosed...help???

Hi Colleen,

I am back to life as normal right now, I went back in to surgery and had a 1.5 cm margin taken, it was so close to my chest muscle that after surgery I had to get rushed back in to put a drain in as I had a massive bleed! The drain was only in for a few days though and all is well right now. I go back for an ultrasound in 3 months. I have had terrible neck and shoulder pain on the same side since the surgery and the woman that I get massage with has told me that this is common after breast surgery. The doctors just dont tell you any of this which makes me angry because I have been told by a physio and a massage therapist that it may help to have some massage for a week before the surgery to reduce post surgery pain. Anyway, I am getting on with things now and trying not to think about the possibility of the tumor recurring but am constantly checking that for sure!I really appreciate you checking in on me Colleen- I have really felt throughout this whole thing that no one I know understands how serious this is and how scarey because Phyllodes is uncommon and rarely heard of. Everyone says 'oh borderline..at least its not malignant' but they dont understand that it can change at any time. Even my surgeon has made me feel as though I am over reacting abit! I had to demand he take more than 1cm margin and demand that I have a 3month ultrasound instead of 6 month and he was only going to refer me to have my right breast scanned and not both?? I have been made to feel like a hyperchondriac except for when I am reading this blog and the other ladies posts. So thank you so very much for all of the advice so far- it has been extremely helpful!I hope that I can help the next person that is searching blindly for info as I was before finding this group.

Best Wishes to you too!

Meredith