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I have just been diagnosed with DCIS. Had a lumpectomy 1 week ago and will get results tomorrow. They have said if it'...","body@stringLength":"792","rawBody":"Hi,
Sorry I'm a newbie, apologies if I'm posting this in the wrong section. I have just been diagnosed with DCIS. Had a lumpectomy 1 week ago and will get results tomorrow. They have said if it's nothing worse will be followed by a course of radiation. Although - everything appears different for me because I have the faulty gene. My team of people are ever so gently \"pushing\" me to have a double masectomy to remove all risk. I also had my ovaries and tubes removed a month ago - as risk reducing surgery (as also a high risk of Ovarian cancer with BRCA2). Which has thrown me into early menopause. I am 45. Wondering if there are any others on this forum with the BRCA1 or 2 gene that are having a similar experience.","kudosSumWeight":0,"postTime":"2018-04-17T19:57:58.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDE","node":{"__typename":"Tag","id":"tag:BRCA1-BRCA2","text":"BRCA1-BRCA2","time":"2025-03-25T05:01:48.624-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:24882_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":292},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"customFields":[],"body":"Hi,
Sorry I'm a newbie, apologies if I'm posting this in the wrong section. I have just been diagnosed with DCIS. Had a lumpectomy 1 week ago and will get results tomorrow. They have said if it's nothing worse will be followed by a course of radiation. Although - everything appears different for me because I have the faulty gene. My team of people are ever so gently \"pushing\" me to have a double masectomy to remove all risk. I also had my ovaries and tubes removed a month ago - as risk reducing surgery (as also a high risk of Ovarian cancer with BRCA2). Which has thrown me into early menopause. I am 45. Wondering if there are any others on this forum with the BRCA1 or 2 gene that are having a similar experience."},"Conversation:conversation:24882":{"__typename":"Conversation","id":"conversation:24882","solved":false,"topic":{"__ref":"ForumTopicMessage:message:24882"},"lastPostingActivityTime":"2018-04-28T21:31:59.000-07:00","lastPostTime":"2018-04-28T21:31:59.000-07:00","unreadReplyCount":15,"isSubscribed":false},"ModerationData:moderation_data:24882":{"__typename":"ModerationData","id":"moderation_data:24882","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:24882_1":{"__typename":"Revision","id":"revision:24882_1","lastEditTime":"2018-04-17T19:57:58.000-07:00"},"ForumReplyMessage:message:24897":{"__typename":"ForumReplyMessage","id":"message:24897","conversation":{"__ref":"Conversation:conversation:24882"},"author":{"__ref":"User:user:20627"},"revisionNum":1,"uid":24897,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"subject":"Re: Newly Diagnosed also have BRCA2 Gene","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:24897"},"parent":{"__ref":"ForumTopicMessage:message:24882"},"body":"@Rubylulu Glad to read that you have now got a path to follow & more important, one that you are happy with. Reading your story, i would have done the same thing! I had invasive DCIS, stage 1, no node involvement so had lumpectomy. My surgery gave clear margins so I was advised I only needed to have 16 doses of rad as precaution BUT as my mum died of ovarian cancer, they sent me off to have the gene test before they were happy to commence my rad. I was very afraid of the result as if it were positive then I would have had to face your choice which seemed too radical for DCIS. As you know, once you have had rad, it makes recon harder if you have to have it in the future so i was throwing up what to do ( rad v mastectomy) waiting for the results. The test came back negative so I went ahead with the rad & needed no chemo or HT. As a precaution, I did have my ovaries & tubes removed from advice from my medical team as mum caught the dreaded disease at 39 y.o & died at 46 y.o. i am 52 y.o so don't need them anymore & may gyny onc said it was a no-brainer for me to have the op. Peace of mind is such a strong feeling & you must now feel like a weight has been lifted. I reckon you won't look back now as you will not have to worry about the BC coming back once you have the op & you will have a \"new couple of girls\" that won't cause you any grief!! Hugs & strength to you xx","body@stringLength":"1418","rawBody":"@Rubylulu Glad to read that you have now got a path to follow & more important, one that you are happy with. Reading your story, i would have done the same thing! I had invasive DCIS, stage 1, no node involvement so had lumpectomy. My surgery gave clear margins so I was advised I only needed to have 16 doses of rad as precaution BUT as my mum died of ovarian cancer, they sent me off to have the gene test before they were happy to commence my rad. I was very afraid of the result as if it were positive then I would have had to face your choice which seemed too radical for DCIS. As you know, once you have had rad, it makes recon harder if you have to have it in the future so i was throwing up what to do ( rad v mastectomy) waiting for the results. The test came back negative so I went ahead with the rad & needed no chemo or HT. As a precaution, I did have my ovaries & tubes removed from advice from my medical team as mum caught the dreaded disease at 39 y.o & died at 46 y.o. i am 52 y.o so don't need them anymore & may gyny onc said it was a no-brainer for me to have the op. Peace of mind is such a strong feeling & you must now feel like a weight has been lifted. I reckon you won't look back now as you will not have to worry about the BC coming back once you have the op & you will have a \"new couple of girls\" that won't cause you any grief!! Hugs & strength to you xx","kudosSumWeight":2,"repliesCount":0,"postTime":"2018-04-28T21:31:59.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":2,"currentRevision":{"__ref":"Revision:revision:24897_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[],"replies":{"__typename":"MessageConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}}},"CachedAsset:theme:customTheme1-1744167880929":{"__typename":"CachedAsset","id":"theme:customTheme1-1744167880929","value":{"id":"customTheme1","animation":{"fast":"150ms","normal":"250ms","slow":"500ms","slowest":"750ms","function":"cubic-bezier(0.07, 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