Forum Discussion
Newbie
Hi Everyone
Well found out on the 17th Oct i have breast cancer!! I still waiting for specialist appointment on the 7th Nov to find out more information. Would like to hear from anyone who just wants to chat or has some advice.
Regards
Kaye
19 Replies
It seems that there are a few advantages of being triple negative. Not a lot mind you but these drugs sound horrible. Chris, I flinched reading the side effects that you have had to endure. I'm only 2 years younger than you and not postmenopausal. I hope you are feeling a lot better now.
CasHi Kaye, my oncology appointment has been moved up to tomorrow. I can't wait to get to it. I want to know what and for how long and that's all that matters to me. Hair is overrated, I'm positive I can rock the scarf, wig, hat :)
I have to go to work in the morning until an hour before my appointment so I won't have time to be thinking about it thankfully.
Yes, there are several of us who are within a week or two of each other in diagnosis, surgery and treatment. I'm still finding out what is where, who does what and things that I should know. Yesterday I found out that Berlei offer free post surgery bras (one per person) and I applied for one. Cancer Council loan wigs and hats and scarves. I'm an inch away from being overwhelmed by the kindness including these lovely people here.
Cas xxx
Cas- Hi Ingrid, I am not on Arimidex, but am on Femara which is a similar type of drug. I had awful side effects to start with, but I am pleased to say that things do settle down with time. I have been on Femara now for over 2 years, and all the aches and pains have gone. My fingers can be a bit stiff, but the weakness and trigger fingers have all but healed. I still take 2 fish oil caps a day, plus vitamin D and keep my calcium intake up. At one stage I took very large doses of fish oil, but my side effects are now well controlled with the normal daily dose. The tendons in my wrists were inflamed for 10 months, but even that has gone now. My skin is drier than it use to be, but at 55 I have gone through menopause, which also causes dry skin and similar symptoms to Arimidex and Femara. Good luck with the drug. Love Chris xx
Anyone else out there finding Arimidex side effects just too hard to handle??? Firstly the acne, then the aches and pains and now my fingernails falling off, I really wonder what the positives are with this drug. I'm thinking a natural alternative is the way to go for me. I would love to hear from other sufferers :)
Hi
Yes it is a roller coaster. I am getting very tired a left work last thursday and have no energy for anything have slept all day today and still feel yuk. I wish you all the very best for your operations.
Talk soon.
Regards
Kayexxx
Jodie ! I meant to tell you this morning. I've also found a Facebook page of breast cancer ladies. A lot of them American, but some from Canada, Ireland, Scotland. All just as lovely as you guys are.
Have a look. https://www.facebook.com/groups/saveherboobies/
I found out a lot about chemo from them this morning. I feel much better now that I have an idea of what goes on.
Cas XHi Janey
Thank you for your kind words and thoughts.
Kaye xx
- Hi Kaye, As cas said, it's a massive roller coaster of emotions. There is so much to take in with all the appointments and information. I had bone and ct scans the day before my mastectomy and axillary clearance. (Same day as the lovely cas). I'm starting chemo this Wednesday. I have learnt so much from the lovely ladies here who are always there to lean on. They understand what we are going through because they have been there too xx The thing I've learnt is to stop and breathe. I was so consumed I couldn't function, but I'm getting better now.. I'm a newbie, but here for you xxx Jodie
Oh ok will do thanks
xx Kaye
- I think most people have scans. I had a bone scan and CT scan. Very scarey. I found myself looking at the radiologists faces trying to see if they looked as though they were seeing something. It was all good though, just the breast and nodes to deal with! :) Deanne xx
