Forum Discussion
Willow21
12 years agoMember
New Member
Hi everyone,
Thanks for having me in your group. This is my story. I was diagnosed in the 8th Feb 2013 at the age of 38. I have a husband and two children aged 15 and 12. I'm a nursing student and c...
Willow21
12 years agoMember
Hi Anita,
I'm sorry to hear of your diagnosis. Its a scary time but it can be a positive outcome. My poorly differentiated neuroendocrine cancer (PDNEC) was treated the same as my IDC. I had 4 x FEC and 12 x paclitaxol followed by tamoxifen. I'm doing pretty well and cancer free. Since my last post I have had a prophylactic mastectomy, tissue expanders and implants.
I did have a CT scan to establish that the PDNEC was a breast primary and not from another part of my body as neuroendocrine is usually found in the gut or lungs. It is rare to be found in the breast. PDNEC is usually made up of approximately 50%+ neuroendocrine markers and basically the cells are malfunctioning and growing out of control and in my case with grade 3 it was growing very fast.
My oncologist wasn't worried about my NEC and her research lead her to treat it the same as IDC. As one of my nodes had micro invasion I didn't need radiation.
Best of luck with your up coming treatment/s. If you have any other questions shot them my way.
Alison x