New diagnosis, have had mastectomy

@Suzi_S61 @Shellbelle_75 I haven't been told anything about recon at all.

@Suzi_S61 re your comment I also have been told reconstructive surgery is not on option for 18 months to 2 yrs re my diagnosis 
I found this to be a big shock as I thought it would be about 6 months....

Hi @Suzi_S61 your words in your post certainly struck a cord with me in being able to relate to your feelings and your physical description as well as that’s where I am at also 

@TeePee and @Spiv1803 Thankyou both so much for reaching out, really we are all fairly similar hey? And all in WA YAY 😀 
@TeePee I totally agree I just want to get things started now the constant doom and gloom at times by well meaning people of what the next 6-12 months or several years maybe at times does my head in. I get it I have triple negative BC it’s crap it’s frightening and I wish it wasn’t the case but geez Louise the only way I am going to get better or best this bloody thing is with action...... 
sometimes dealing with others grief and shock is actually harder than your own 😔
@Spiv1803 it’s great to know you are a year down the track I would love to hear your thoughts on treatments and where things are at for you if you where comfortable 
soul sisters ladies on a TNBC case 
sad situation but could be a support blessing for all of us x

Wow @TeePee, I'm just about one year ahead of you  
Very similar diagnosis, and I'm in Perth too. Message me any time 

Hi @Shellbelle_75 welcome and I'm also sorry to meet in these circumstances. Jeepers, we're almost twins with out diagnosis!

I'm pretty much the same as you, I just want to get on and get this done. I feel like some of my friends and family are more panicked about this than I am. They keep telling me how hard the next 6 months are going to be, but im not dwelling on it too much yet and what's going to happen, plenty of time for that when it happens!

We're a few hours apart but please do Dm me if you want to chat further.

Hi TeePee, did they give you an information sheet on arm exercises?  I have been doing them since the day after surgery. Just bending and stretching and standing away from the wall and walking your hand up as far as you can face on and sideways. The stretching really helps. If its painful only push it as far as you can and then relax and just keep trying. It will get more flex in it over time. Mycarmpit was completely numb but I am slowly getting sensation back 3 weeks after surgery. It still feels wierd in the evening a partly numb partly sore sensation under my actual arm. I am pretty sure its nerve pain. I just take some panadol and massage seems to help a lot. 
We are definitely all different in how we recover. Even our individual stories. I too have been very positive about this whole thing. People keep saying it's okay to cry and looking at me with those sympathy eyes. I have seen my Mum go through this and lost her when she was 39. Shocking isn't it but I have been lucky to come this far unscathed. I always felt like this was the demon I would have to face one day. I am a very strong minded and stubborn woman. People think I am vulnerable but only when it comes to other peoples care. I believe while I can walk and talk I am going okay. 
I am sorry you are in a bit of pain. Hopefully that will ease with time. Make sure you tell your surgeon or contact your Breast Nurse they may be able to suggest things to help. 
I am seeing my oncologist tomorrow. 

Hi @TeePee I just wanted to touch base and say I am sorry to have to meet you in these circumstances but I also live in WA just the SW I have the triple negative factor also and the multi focal diagnosis 
I have just had a right mastectomy and auxiliary node clearance a week ago and I am waiting on pathology results and healing from surgery also.
just wanted to touch base and say hi as I am looking for people to connect with people who have the triple negative factor which scares me a lot!
I have a grade 2 not sure on Stage yet
I have a sense of calm most times with occasional panic ..... as now I just want to commit to treatment and fighting this.
take care 

BC screws with so many of our plans eh @TeePee? Last summer was stuffed by mine. And I threw my son's 18th birthday party between my lumpectomy and re-excision, without telling a soul (except for the people under my roof) as I wanted the focus to be on him. So I feel you re the 16th birthday! Good luck. K xox

Thanks @Suzi_S61. It's been a month today since my diagnosis and 2 weeks post surgery. I saw both my surgeon and oncologist this week. I have Triple Negative, grade 3 stage 2a, multifocal invasive ductal, the largest measuring 1.5cm, and cancer in two nodes (out of 11).

I start dose dense chemo on 15 October with 4 sessions every 2 weeks for part A and then part B will be different. I'll have the gene test before I start and if it's positive I'll have a hysterectomy also.

After the initial shock I feel quite calm about it - everyone else seems to be freaking out and focusing in on the next 6 months and how hard it's going to be and I seem to be consoling everyone that it's going to be ok. Maybe I'm in denial about it all - I occasionally have to remind myself I have cancer - but I'm just taking it one day at a time, no point stressing about what's going to happen during chemo until it happens.

How are you going with your recovery from the mastectomy and axilla clearance? I'm still quite sore and my arm doesn't have as much movement as I'd like. I need to get some physio but it's tricky being school holidays now and everyone is busy...and my eldest turns 16 on Wednesday! I feel so under prepared for it...and I can't drive and go out shopping!! 🙄

And I'm meant to be away on holidays now...I'm so bummed about that 😔