Forum Discussion
TeePee
8 years agoMember
New diagnosis, have had mastectomy
Hi All
I was diagnosed with breast cancer on 24 August. Core Biopsy and FNA showed that I had cancer in the tumour, in the milk ducts and lymph nodes. I freaked out at that but saw surgeon 24 hours later who was quite reassuring that she didn't feel like it had spread (I was otherwise fit and healthy). Had bone scan and CT's and she was right, it hadn't spread.
Had mastectomy on right breast and full lymph node clearance on 6 Sept, just at home recovering now. Surgeon follow up appt this Thursday to find out all of the pathology results, hopefully meet Oncologist and find out 'the plan' So back to waiting again. Initially thought I would have reconstruction but I've been reading some posts on a FB page and it's freaking me out.
'm a single Mum with 3 kids (9, 11 and 15), and while initially they were freaked out they seem ok now (they're back to just leaving everything for me to do 🙄).
I was diagnosed with breast cancer on 24 August. Core Biopsy and FNA showed that I had cancer in the tumour, in the milk ducts and lymph nodes. I freaked out at that but saw surgeon 24 hours later who was quite reassuring that she didn't feel like it had spread (I was otherwise fit and healthy). Had bone scan and CT's and she was right, it hadn't spread.
Had mastectomy on right breast and full lymph node clearance on 6 Sept, just at home recovering now. Surgeon follow up appt this Thursday to find out all of the pathology results, hopefully meet Oncologist and find out 'the plan' So back to waiting again. Initially thought I would have reconstruction but I've been reading some posts on a FB page and it's freaking me out.
'm a single Mum with 3 kids (9, 11 and 15), and while initially they were freaked out they seem ok now (they're back to just leaving everything for me to do 🙄).
68 Replies
- Shellbelle_75MemberThanks gorgeous right back at you it does help to chat with you beautiful ladies in such a time of uncertainty for all of us
onwards and upwards my friend! @Suzi_S61 - Suzi_S61Member@Shellbelle_75 stay strong we are with you. It seems a blur since I first went to my mammogram. Head is still spinning. Let us know how you get on. Heaps of love your way xx
- Shellbelle_75MemberThankyou @Suzi_S61 I will ask the question as I had a right mastectomy and auxiliary node clearance 23 nodes removed
fingers crossed hey the recovery continues and these feelings pass xx - Suzi_S61Member@Shellbelle_75 a seroma is a build up of fluid usually when a mastectomy has been performed. Its old blood fluid because nodes have been removed. I don't know if it can happen w/o mastectomy. The knot you refer to sounds similar to what I have experienced. Also a cold tingling on the back of my arm. I found massage gently hrlped me although sometimes a bit too sore to do that. The best results were from the exercises. Some days better than others. It will get better. 4 weeks post op feeling pretty good now. I had 12 nodes removed and single mastectomy.
- Shellbelle_75Member@TeePee I appreciate your support I don’t know hey chick I feel so confused the triple positive thing sure as hell doesn’t feel positive on any level right now hey :( just feel like I got the trifecta of shit!!!
i think what ever each of our diagnosis is it’s bloody scary for every woman and we all just want it to be treated and gone.Triple positive appears to be from what I have read particularly aggressive and more prone to reoccurrence.....what ever the case I just wish us all to be well and free of this disease ASAP xx - TeePeeMember@Shellbelle_75 I read your Triple Pos diagnosis on another post. That's good news as you have more treatment options.
- Shellbelle_75MemberHey @Suzi_S61 sadly both breast care nurses in my zone are away for my appointments,can’t complain though they are at a BC conference,so I will debrief with them after.
yes I am doing the exercises three times a day and massage but the tightness feeling and pain under my arm and armpit just like a tennis ball is not disappearing,I am taking panadol and neurofen every day.Tell me what’s a seroma?
the BC nurse and surgeon checked the area and they just said they roughy it was odema hence the visit to the Physio the recommend this Friday xx - Shellbelle_75MemberOh and ladies I have an embarrassing confession... I am Triple positive not Triple negative 🤦‍♀️ Turns out I didn’t really understand my pathology report initially .....feel like a dumb arse but acknowledge I have a lot to learn and I am trying @TeePee and @Suzi_S61
- Suzi_S61Member@Shellbelle_75 that sounds very positive about the nodes. It's understandable they want to be cautious and good too. It's better if they are thorough. Don't worry about the oncologist appointment. If you can ask the breast nurse to go with you they are great because they understand whats being said they link you in with whatever is necessary and give you heaps of support. How have you been going with your arm exercises or is it too painful?. I was told the exercises help enormously with the fluid but you may have a seroma?. I had mine drai b ed 3 times in 3 weeks. It doesn't hurt but feels so much better afterwards. Just a wild guess no gp here lol. Hope the physio helps. Stretching exercises but stop if there is pain. Take care xx
- Shellbelle_75Member@TeePee sending you love and healing and a shit load of understanding from one very resilient sole parent mumma to another x
Hey @Suzi_S61 Thankyou for your kindness in checking in on me :)
some good news yesterday after 23 nodes removed only one had a very tiny .2mm cancerous cell in it all others where clear. I meet with the radiologist Thursday and oncologist Monday re treatment which I am glad about but also very nervous.....
the surgeon I saw on Monday was my surgeons business partner but he is away currently
she was lovely but not convinced the what was previously deemed a .8mm swollen lymph node in the remaining breast is just that.She had requested another breast ultrasound in two months and core biopsy as a second opinion,this worries me but I understand she is being very proactive and cautious
@TeePee I am seeing a Physio on Friday as I am only two weeks post surgery but I have a lot of pain from the auxiliary node clearance and they think odema so I am totally hearing you on that one my friend.
so the journey continues..... kindness helps from those who understand Thankyou ladies xx