New at this
Hi everyone, I was called in for a follow up at the Breastscreen clinic in Canberra in early January 2019 and officially diagnosed with invasive ductal carcinoma grade 1 shortly after. Waiting around ...
Forum Discussion
@Cruiser
I am so sorry you have had to join us here on this forum. What a wonderful group of supportive and positive people they are though. This forum has helped me enormously as I'm sure it will you. I hear you and feel your pain!. I too am in Canberra and was diagnosed on the 8th November 2018. We were meant to be flying out for Europe on the 28th November 2018 to celebrate our eldests son graduation from school. We had been booking and planning for the best part of two years and we were going for 9 weeks. I had, had a reminder for a mammogram and booked to go as I was a little overdue but I'd been having them for years and had always been clear so I had no concern for it coming back positive.
Our lives were instantly thrown into turmoil and I knew our holiday was cactus. Fortunately we had taken out travel insurance. So we embarked on the great unwind of all our bookings and instead I was making a booking for a surgeon.
You seem to be organised on the hospital front and I can't think of anything else that you would require. I had packed so much and only required so little.
The one thing that I have found enormously helpful for sleeping has been a full body wrap around pillow. It has been my absolute saviour since having to learn to sleep on my back. It took all the pressure off the bits that hurt post surgery. 8 weeks post surgery and I'm still using it as it allows me to sleep on my side in comfort whilst I'm still a bit tender where my nodes were removed.
My diagnosis went from lumpectomy with radiation and meds to mastectomy after I had an MRI that showed the tumour to be larger. It was also thought there was no node involvement to having 3 nodes involved. So I'm having the whole gamut. 14 rounds of chemo and then 5 weeks radiation and then on meds for 7 years. I can't tell you how awful it was to be given such positive hope only to find after the MRI and surgery pathology that it meant I would have the works. I have my fingers firmly crossed for you, that a lumpectomy, rads and meds will be or that you require.
If you would like any info re the Canberra I'm just shout out.
Hang in there it's a bloody nightmare but you've got this!
Thinking of you
Cathy
I am so sorry you have had to join us here on this forum. What a wonderful group of supportive and positive people they are though. This forum has helped me enormously as I'm sure it will you. I hear you and feel your pain!. I too am in Canberra and was diagnosed on the 8th November 2018. We were meant to be flying out for Europe on the 28th November 2018 to celebrate our eldests son graduation from school. We had been booking and planning for the best part of two years and we were going for 9 weeks. I had, had a reminder for a mammogram and booked to go as I was a little overdue but I'd been having them for years and had always been clear so I had no concern for it coming back positive.
Our lives were instantly thrown into turmoil and I knew our holiday was cactus. Fortunately we had taken out travel insurance. So we embarked on the great unwind of all our bookings and instead I was making a booking for a surgeon.
You seem to be organised on the hospital front and I can't think of anything else that you would require. I had packed so much and only required so little.
The one thing that I have found enormously helpful for sleeping has been a full body wrap around pillow. It has been my absolute saviour since having to learn to sleep on my back. It took all the pressure off the bits that hurt post surgery. 8 weeks post surgery and I'm still using it as it allows me to sleep on my side in comfort whilst I'm still a bit tender where my nodes were removed.
My diagnosis went from lumpectomy with radiation and meds to mastectomy after I had an MRI that showed the tumour to be larger. It was also thought there was no node involvement to having 3 nodes involved. So I'm having the whole gamut. 14 rounds of chemo and then 5 weeks radiation and then on meds for 7 years. I can't tell you how awful it was to be given such positive hope only to find after the MRI and surgery pathology that it meant I would have the works. I have my fingers firmly crossed for you, that a lumpectomy, rads and meds will be or that you require.
If you would like any info re the Canberra I'm just shout out.
Hang in there it's a bloody nightmare but you've got this!
Thinking of you
Cathy