Forum Discussion
NarelleF
14 years agoMember
My story
Hi Everyone
Well this is all very new to me, the blog thing I mean not just the breast cancer.
I guess sometimes I feel that I want to ramble on and I don't want to impose on my family or friends. Yes sometimes I just want to feel woe is me but I guess this is very normal - must stay positive.
I go in on Monday for my op and then play the waiting game for results I think that is going to be the hardest time - the not knowing.
Would love to hear if this is all normal and your experiences.
Narelle
22 Replies
- NarelleFMember
Thanks for your wishes - Monday almost here - I bought a high pressure cleaner to my husband today but I have just cleaned all the paths and stepping stones - just for something to do - was great - felt so much in control after enduring a well meaning lady at the checkout at woolies rambling on about her friend and how she had cancer and now a 'miracle cure' - I started tear up and the poor lady had no idea why - probably thought I was over emotional - little did she know. Felt a bit stupid and got out of there as quickly as I could.
Hope your treatment is going well and the outcome is a good one for you.
Take care
Narelle
- ShazinozMember
OF COURSE you have something to complain about. Waiting is horrible weather it is for 1 day or lots of day.
None of should have to suffer and wait if it can be helped.
I was just REALLY unlucky with the timing of my diagnosis being over the Christmas/New Year holidays.
I just wanted you to know tht the waiting can be done, and as long as you keep your mind busy, you can get through it and come out the other side.
I know what you meanabout not wanting to offend or upset family and friends, as I feel my husband especially is doing so much, I don't want to dump more on him.
Monday is just around the corner and everything will go Fine. Good Luck (not that you will need it) for the Op and for your pathology results afterwards.
- ShazinozMember
OF COURSE you have something to complain about. Waiting is horrible weather it is for 1 day or lots of day.
None of should have to suffer and wait if it can be helped.
I was just REALLY unlucky with the timing of my diagnosis being over the Christmas/New Year holidays.
I just wanted you to know tht the waiting can be done, and as long as you keep your mind busy, you can get through it and come out the other side.
I know what you meanabout not wanting to offend or upset family and friends, as I feel my husband especially is doing so much, I don't want to dump more on him.
Monday is just around the corner and everything will go Fine. Good Luck (not that you will need it) for the Op and for your pathology results afterwards.
- NarelleFMember
Hi Shazinoz
OMG I have nothing to complain about - I take my hat off to you for your courage having to endur all of the waiting time. I did not have anyone else in my family who had BC however my Mother had two different types of cancer so they were extremly interested to hear all that. My cancer is very deep and I have to have a hookwire inserted first as they are unable to feel it - it is only small 2cm but I have 2 - one contained and the other invasive so the sooner I have the op the better and Monday is just around the corner.
Take care with everything you are going through - I found that after reading everyones comments to me that this site is great. Just to be able to vent, share whatever is lovely - as I feel that sometimes I have to watch what I say in case I offend family & friends who have been great but sometimes I do not want to be nice.
I will keep in touch
Narelle
- NarelleFMember
Hi Julie
Thanks for your encouraging words. After reading some of the stories that people have written to me about I have to think that I am lucky - some have had to wait a great deal longer than I - but Monday is just around the corner so not long now.
It is really nice to be able to write how I am feeling without worrying about what people will think - my family have been great but sometimes it is just nice to vent without the worry of hurting other peoples feelings. Gosh I sound like such a dragon but I am sure you will know what I mean.
Thanks again
Narelle
- chipmunkMember
Hi Shazinoz
"Crikey" as they say. Your waiting game, must have been horrible, can't believe how long you had to wait for everything.
With me, I found the lump in my underarm on a Saturday had tests on the Wed/Thursday, diagnosed on Friday, saw the surgeon on Monday, had CT and Bone scan on Tuesday and was in surgery the Wednesday and results that Friday. So in basically a week I had all done. I start chemo next Friday. I also need to have radiation after that and then Hormone treatment for 5 years. Also my oncologist talked to me about having my ovaries removed later. I thought, "what the heck" dont need them anymore, I have two beautiful boys aged 11 and 12. My health is more important.
After all the "waiting", at least now you are on the road to having treatment.
I am 47 years old, and me to can't believe how young some members are. Really isn't fair. While I was in hospital, two doors from my ward there was actually a male with BC. Gosh, I felt for him. I suppose males think this doesn't happen to them, it only happens to females. As they dont have "breasts" as we call it, they cant get BC. Wrong!!
I try not to think about it to, but at times it just "creeps" into my head. A little upset now and then , but then I just try to get on with it.
anyway take care and keep in touch
Julie XX
- ShazinozMember
I was diagnosed on 22/12/11 and had a nipple sparing and partial skin sparing mastectomy with immediate silicone implant reconstruction on 03/02/12, and began TCH Chemo on 02/04/12 (second cycle due 23/04/12), my cancer is ER+, PR-, HER2+, LVI+, and 1 sentinel node was + (with a small deposit/ few cells, 5mm I believe).
I turned 41, 3 days ago, so began my journey at 40, but breast cancer doesn't dicriminate by age, I seen members here who are only in there 20's.
All that you mentied sounded normal to me. The waiting is the worst _ I had to wait for 25 days after I got my initial diagnosis of breast cancer to see a breast surgeon (Christmas is NOT a good time to get diagnosed becasue all of the Dr's are on their Christmas/ new year break), all I knew was i had a nearly 3cm tunour that was stage 2, and it was oestrogen receptor positive. Then I saw my surgeron found out more, decided on my mastectom and the - yep you guessed it - waited again this time for 18 days to have to my surgery. Then Yep - I waited again for my results, this time for 32 days to get my pathology results, and find out that Chemo was on the cards, and then I waited agin, this time for 27 days to begin Chemotheapy.
So waiting- yep know ALL ABOUT IT. It is hard, but it can be done (a lot of my waiting was becasue of ebing diagnosed over tChristmas and then when the Dr's and theatres started up again they had to clear the back log of urgent cases, of which I was only 1, and the extended wait for my pathology results was becasue ym surgeon wanted to (and did) present my case to the oncology "meeting" thing they have here once a month, where all the surgeons, medical oncologists and radiation oncologist get together and discuss cases and what treatments are best etc. As I have a rather unusaly pre-cancer medical history my case was a little more involved than most, and they wanted to talk about it before making any decisions.
I still don't know if I am having radiotheapy, but it seems unlikely as they think the risks outweigh the benefits for me.
My best suggestions on the waiting is to try to do anythign you can to take you mind of it and to not dwell on it, I found nights the hardest, as my mind didn't have anything else to focus on, but I found that reading or watching Tv untilI was tied before going to bed helped. And allow your self to yell, scream, cry, laugh etc what ever you need to do to get through the waiting.
Hope this helps (even a little).
- ShazinozMember
I was diagnosed on 22/12/11 and had a nipple sparing and partial skin sparing mastectomy with immediate silicone implant reconstruction on 03/02/12, and began TCH Chemo on 02/04/12 (second cycle due 23/04/12), my cancer is ER+, PR-, HER2+, LVI+, and 1 sentinel node was + (with a small deposit/ few cells, 5mm I believe).
I turned 41, 3 days ago, so began my journey at 40, but breast cancer doesn't dicriminate by age, I seen members here who are only in there 20's.
All that you mentied sounded normal to me. The waiting is the worst _ I had to wait for 25 days after I got my initial diagnosis of breast cancer to see a breast surgeon (Christmas is NOT a good time to get diagnosed becasue all of the Dr's are on their Christmas/ new year break), all I knew was i had a nearly 3cm tunour that was stage 2, and it was oestrogen receptor positive. Then I saw my surgeron found out more, decided on my mastectom and the - yep you guessed it - waited again this time for 18 days to have to my surgery. Then Yep - I waited again for my results, this time for 32 days to get my pathology results, and find out that Chemo was on the cards, and then I waited agin, this time for 27 days to begin Chemotheapy.
So waiting- yep know ALL ABOUT IT. It is hard, but it can be done (a lot of my waiting was becasue of ebing diagnosed over tChristmas and then when the Dr's and theatres started up again they had to clear the back log of urgent cases, of which I was only 1, and the extended wait for my pathology results was becasue ym surgeon wanted to (and did) present my case to the oncology "meeting" thing they have here once a month, where all the surgeons, medical oncologists and radiation oncologist get together and discuss cases and what treatments are best etc. As I have a rather unusaly pre-cancer medical history my case was a little more involved than most, and they wanted to talk about it before making any decisions.
I still don't know if I am having radiotheapy, but it seems unlikely as they think the risks outweigh the benefits for me.
My best suggestions on the waiting is to try to do anythign you can to take you mind of it and to not dwell on it, I found nights the hardest, as my mind didn't have anything else to focus on, but I found that reading or watching Tv untilI was tied before going to bed helped. And allow your self to yell, scream, cry, laugh etc what ever you need to do to get through the waiting.
Hope this helps (even a little).
- chipmunkMember
Hi Narelle
I am sorry to hear that you will probably be going through what some of us already have. I hope all goes well and you will be in my thoughts.All that you are feeling at the moment , I can truly say I was feeling the same. I to have recently been diagnosed with BC. I had my op on 21/3/12 and had my lump removed from the right breast and 20/20 lymph nodes removed all with cancer. I will be starting my chemo on 27/4/12. So feel free to ask whatever. This site is fantastic and I praise the wonderful ladies on this site with their courage and encouragement they all bring. I also am the "baby" on this website, but it doesn't take long to know that you have great people here to help and great friendships will develop.Keep posting.
All that you feel is very normal, so remember to ask heaps of questions , and remember no question is too small to ask.
Good luck and big hugs to you
JulieXX
- chipmunkMember
Hi Narelle
I am sorry to hear that you will probably be going through what some of us already have. I hope all goes well and you will be in my thoughts.All that you are feeling at the moment , I can truly say I was feeling the same. I to have recently been diagnosed with BC. I had my op on 21/3/12 and had my lump removed from the right breast and 20/20 lymph nodes removed all with cancer. I will be starting my chemo on 27/4/12. So feel free to ask whatever. This site is fantastic and I praise the wonderful ladies on this site with their courage and encouragement they all bring. I also am the "baby" on this website, but it doesn't take long to know that you have great people here to help and great friendships will develop.Keep posting.
All that you feel is very normal, so remember to ask heaps of questions , and remember no question is too small to ask.
Good luck and big hugs to you
JulieXX