My journey starts today.
I am so glad I found this group today and already reading everyone's stories gives me so much comfort I have somewhere to go when lonely. I find online chats good for me and maybe I might make some n...
Forum Discussion
Great that you've found us & reached out @TrishV .... I didn't have chemo but plenty others have & not every one gets really crook & lose their hair xx. Ask about a Cold Cap as it can reduce hair loss. (it may be a tad uncomfortable in winter tho!)
You should be linked up with a Breast Care Nurse (McGrath or other) and they will be a great support for you - as will this forum.
Whack up any question that you have - if you add them to this thread, it will sort of become a bit like a 'diary' of your active treatment.
Yep, it is a real rollercoaster ride, so buckle up! xx.
Jump onto this thread for some insight into the rest of the forum (we even have some funny threads, as god knows, we all need a laugh! Some great comfort in the Wise Words too. ;) there are some 'tick sheets' at the end of it, re how you are going physically & mentally - as this bloody disease mucks with our brain even more than our body xx
https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-our-new-members#latest
take care & all the best for your appointments - consider recording them for future reference & also ask for copies of all your reports (printed or PDFs) as every time you see a specialist, they report back to your GP. I keep all my blood tests too. ;) Get a BIG BOX .... and store all the paperwork in there - so you can find it & check it out later, if you need to ;) Take your hubby or bestie with you to your meetings, both as support and an extra set of ears. It can be difficult to remember everything that was said ... hence the recordings ;)
You should be linked up with a Breast Care Nurse (McGrath or other) and they will be a great support for you - as will this forum.
Whack up any question that you have - if you add them to this thread, it will sort of become a bit like a 'diary' of your active treatment.
Yep, it is a real rollercoaster ride, so buckle up! xx.
Jump onto this thread for some insight into the rest of the forum (we even have some funny threads, as god knows, we all need a laugh! Some great comfort in the Wise Words too. ;) there are some 'tick sheets' at the end of it, re how you are going physically & mentally - as this bloody disease mucks with our brain even more than our body xx
https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-our-new-members#latest
take care & all the best for your appointments - consider recording them for future reference & also ask for copies of all your reports (printed or PDFs) as every time you see a specialist, they report back to your GP. I keep all my blood tests too. ;) Get a BIG BOX .... and store all the paperwork in there - so you can find it & check it out later, if you need to ;) Take your hubby or bestie with you to your meetings, both as support and an extra set of ears. It can be difficult to remember everything that was said ... hence the recordings ;)