Forum Discussion

Butterfly_40's avatar
9 years ago

My journey of B C

Hi everyone,

I was formally diagnosed BC with multifocal invasive lobular carcinoma from biopsy 2 days before Christmas in 2016. I had lumpectomy and sentinel nodes biopsy 2 days before New Year. I recovered really well from the surgery. 

From the day I went to GP to check out a lump I felt on my breast to the surgery, it was only 2 weeks. I was in total SHOCK. I cried so much. I went through WHY ME. I am 40 years old, never smoked, no alcohol, no drugs, I go to gym 3 times a week, eat healthy, I am a nurse who always care for others. After the why me phase and after surgery, I looked at my two beautiful children and husband, I felt so lucky and grateful that I have them. I am surrounded with lots of love by my family and friends. 

I was at stage 1, grade 2, my lymph nodes were clear, but There were LCIS across the whole specimen. The multidisciplinary medical team recommended mastectomy based on my age. My breast surgeon expressed his opinion to me prior to the multidisciplinary meeting, he preferred not go for mastectomy, just regular check ups. Because of the recommendation from the multidisciplinary meeting, my breast surgeon referred me to a plastic surgeon and asked me to think about whether I go for mastectomy. I do want to keep my own breast, but I don't want to leave any chance for the LCIS turn into cancer again. I have been reading and gathering information about mastectomy and reconstruction. I don't know which one is best for me, implant or tissue flap? 

As I have been on sick leave since mid December, I will have mastectomy at some stage. I am planning go back to work soon while I am waiting to see the plastic surgeon and the date for surgery. I don't know how I am going to cope and start feeling the anxiety about returning to work. I will face so many very caring colleagues asking me "where have you been " "what happened to you ", because they would have seen my roster marked as "sick leave" for all this time. Can someone give me some strategies how to cope better returning to work ? 

I have been reading some of the discussions in this forum, there are so many of you are so inspirational and so supportive to others. Thank you for sharing your journey and helping others to get through the challenges

24 Replies

  • I was only away from work for a week (mastectomy, no reconstruction). I felt strongly that I would be better working if I could and I had told my boss and co-workers immediately I was diagnosed, so they knew what was going on from the start. Telling others (apart from family) was more gradual. Sharing it or not is a very personal decision, and I can only really talk about what I did, Others make different decisions, for good reasons. Being open about it made it easier for me. I took the day off for my chemo day when it was once every three weeks, but only took a morning off when it was weekly. I was lucky and had no nausea or fatigue, so it was pretty much business as normal. I chose to wear a wig - it was light, easy and comfortable and while all my immediate colleagues knew (at least three wanted one!), I liked the fact that I could walk into a meeting (or a conference) and my health didn't become an immediate topic. As I actually felt very well, this was good. It's hard enough to deal with people asking (kindly) about your health when you are unwell, but it's pretty weird when you are feeling alright. I found people did ask how I was, but to a certain extent that  may have been because I opened up about it first.

    It may help if you set the tone about going back to work. A staff member of mine who returned to work after a very painful bereavement, worded me up first - no "so sorries", no condolences, just business as normal and some funny stories would be much appreciated. So I worded up everyone else, and that's what we did. Perhaps you have a friend or colleague at work you can talk to about what you would prefer? 

    Very best wishes

  • I found group emails helpful.  Sent them every so often updating friends on my treatment.  I am sure some appreciated it, they didn't want to ask but wanted to know.

    I am retired so I can't help specifically with advice about going back to work.  However overall I found I wanted people to ask me how I was going.  I found it odd and a bit hurtful when people didn't ask me how I was going.  No doubt people had various reasons for not asking.  So when you go back to work it might turn out you appreciate being asked what happened.  There are a lot of kind caring people out there and their supportive interest in you will help you.

    i couldn't have worked through my treatment in any event.  Everyone is different, some people cope better with the treatment than others, but it is very fatiguing for some of us.  Nursing is hard work and you are on your feet most of the day, not for everyone while undergoing cancer treatment.  Very best wishes for the treatment.  Karen 
  • You know I decided to just tell my team of nursing friends. I created a facebook page separate from my normal one and invited people in. This became my journal. I updated what was happening including photographs etc. That way no one had to ask..it was there. It also gave them rare insight into what was happening to me. I often attached links about treatments. Reconstruction  stuff. Surgery. Side effects. All those things. That way not only did they see beyond pink sister but the real daily struggles of a woman with bc and the fears / treatment we endure. When people know they then become a source of support and strength too.

    I emotionally found I couldn't work, and also physically. I work now in mental health. I had a bilateral mastectomy with immediate reconstruction with tissue expanders which took me 6 weeks to heal. I was then onto chemo which I found very hard.

    I was able to claim trauma insurance against my life insurance which took the pressure off and used some long service leave also. Your employee actually needs to be able to provide you with alternative duties if your current work role is too demanding. That is something that can be considered. I have returned to work but gradually building my hours as the fatigue following chemo was hard and I needed to think of myself and family. 

    Hoping all goes smoothly for you. I am happy with my choice of reconstruction. There are many different options and it is often easier to plan it for the same time. I miss my breasts, but my fear of return made my decision easier. 
  • Hi @"Butterfly 40". I'm sorry to hear about your diagnosis. I'm sure members will jump in and share their wisdom, but I want to let you know about some resources we have that you might find helpful. 

    The My Journey Kit is a free resource for people that have been newly diagnosed. It contains information and a journal. Your breast care nurse may have ordered one for your, but if not, you can order it online here or call us at 1800 500 258.

    We have a group for Young women here. Our wonderful young women like @InkPetal, @Vivianna, @pink_pen, and @gurneys can chime in further.

    We also have a group on Choosing breast reconstruction here and members like @Jane221 and @mum2jj are very knowledgeable on this subject.