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HelenV's avatar
HelenV
Member
4 years ago

Metaplastic tumour - anyone else out there?

Hi everyone, 
5 years ago I had a very small triple negative lump removed (<4mm) lymph nodes and margins clear and the lumpectomy was followed by radiation.  Fast forward to my annual scans last November and they showed a new lump in approx the same position as the last.  A core biopsy showed a lump that did appear cancerous but not triple negative.  In fact it showed ER+ which turns out was not correct.  A mastectomy (right side) followed in December and pathology showed a Squamous cell carcinoma.  A PET scan, oncology consults and retesting of the pathology and a comparision to the lump from 5 years ago followed.  The verdict is now that I had a metaplastic squamous cell carcinoma that was orginally a triple negative lump.  I'm about to start chemo - AC followed by paclitaxel.
It's a pretty lonely journey when no one else seems to have the same experience and the only things that pop on a search for metaplastic breast cancer are really, really scary and depressing.  Has anyone else out there had a metaplastic tumour?  

13 Replies

  • Hi @HelenV

    I didn’t have your diagnosis but did have your chemo regime - lots do. Most find the A/C hardest and the paclitaxel relatively easy - I was the other way round, no way really of knowing till you start. But I worked throughout and I am no stoic, had a few side effects but no nausea, no fatigue. Nine years on, so far, all good! Very best wishes for your treatment and recovery. 
  • So sorry to hear this diagnosis, @HelenV ..... I hope someone else can jump on & help you with info xx

    Has your Onc mentioned the possibility of Immunotherapy?  Advances are being made every day on many cancers - even tricky ones, in combination with chemo.  If it hasn't been mentioned, maybe quiz them over it?

    Take care & all the best for your ongoing treatment xx