Hello everyone. It has been ages since I have posted. Since this site was re done I no longer got notifications, then 2 major surgeries in 2016 and life kind of took over.I was diagnosed with Lymphoedema about 8 weeks ago. Everthing was going along swimmingly. I had lymphoedema but only to a fairly minor degree then one morning about 8 weeks ago woke with a swollen hand and arm. Such a shock. So have had the intensive therapy with the bandages and now have a compression sleeve which just keeps the lymphedema controlled to a point. My struggle is that I was just being able to move on after treatment and surgeries, then this. The constant reminder every day is there now and am really struggling. Is there anyone else in a similar situation?

An update on my last post - beware the manicure. I did get cellulitis after a manicure - probably not even the salon's fault - pushing down cuticles even with clean implements may be enough to let the sort of germ that would not normally cause any issue at all into the body and the arm is simply not well enough defended. Once I twigged what it was (bit slow there!) it was easily fixed by antibiotics and I was actually quite pleased that it had started to resolve without treatment - something's still working! Been fine since, but don't want to do that again.

@Chrissy555, if you're looking for a qualified lymphoedema therapist, try this linkhttp://www.lymphoedema.org.au/the-register-updated/find-an-ala-accredited-practitioner/Hope that helps

just want to mention that if you have trouble getting to a physio with experience in lymphodema and/or have issues with doing the self massage (I have damage to the other arm), I trialled a compression pump at my local oncology unit and then brought my own and got a physio at specialist lymphodema clinic to show me how to use it and now use that at home regularly. Bit expensive upfront to buy but I'm in a country area without access to lymphodema trained physios and for me was definitely worth it.

Jobst all the way. I need made to measure, they are expensive but one of the good things Qld health do. I am seen by their cancer occupational therapist who measures me and I don’t pay. Very grateful.

Can lymphoedema occur well after an operation? I never experienced it after my operations in 2015. Just recently I'm experienced discomfort under my right arm. My lumpectomy was on my right breast with no lymph nodes removed. There is always something for us to face isn't there? Im sure there will be some lovely ladies who will be able to help with advice.

Lymphoedema and recurrence fears | BCNA Online Network

64 Replies

melclarity
Member
9 years ago
Andij! I think we can all agree, we feel that it never ends! or one thing after another! uuugh! I haven't suffered Lymphoedema though at a Rehab Course I did for 6 weeks, they did say it can hit you at any time, recently after surgery or even like years down the track, which I was really surprised about. So Im sorry to hear this has happened! I think its super normal to struggle, so I try and strip it back when I can to what im dealing with in this moment. If I looked at the big picture, I too would be so upset and disheartened. I guess thats why I always say one thing at a time, one step at a time. Hugs Melinda xo
LITHGOW1950
Member
9 years ago
Damn! Better get the soreness under my arm checked. Can you tell me is it best to see my GP or a physio?
Andij
Member
9 years ago
Hi. My surgery was May 2015 with all Lymph Nodes removed from left arm pit. Lymphedema has just taken off about 8 weeks ago. It can happen anywhere down the track I think.
LITHGOW1950
Member
9 years ago
Can lymphoedema occur well after an operation? I never experienced it after my operations in 2015. Just recently I'm experienced discomfort under my right arm. My lumpectomy was on my right breast with no lymph nodes removed.
There is always something for us to face isn't there?
Im sure there will be some lovely ladies who will be able to help with advice.

Forum Discussion

Lymphoedema and recurrence fears

64 Replies

Recent Discussions

Fluoxetine and Letrozole

2nd operation DCIS

3rd Op.

Covid jab

Triple positive invasive lobular carcinoma

Disclaimer:

Foundation partner	Major partners