Lymphoedema and recurrence fears

Share said:

Hi Ladies, thought I would jump in here - I am a "13 years after the fact" !  Yes @Afraser - you are right !

I had a mastectomy with auxillary node clearance in 2003 - never any problems with lymphedema. Vigilantly did my exercises to ensure that I would have complete use of my arm - had 15 lymph nodes removed.

Had my secondary bc diagnosis in 2015.

Lymphedema raised it's ugly head about 4 weeks ago.

Since then I have been seen a lymphedema massage physio for some sessions and good exercises along with a fitted compression sleeve.

After getting my head around the secondary bc diagnosis and radiotherapy following bone pain and a few niggling issues, things had just started to settle down - now this !!!

Hi @Andij - so frustrating given that you think you have some control back !

Go onto the Australian lymphedema therapy site and check on location for therapists. That's where I found mine or perhaps check with your GP and or physio.

All the best.

Regards

Sheryl

So very sorry to hear of your return Sheryl. Our biggest fear which for you has been realised:( Seems to be when it hits you, just when you think you are getting the hang of this new normal doesn't it. I do have a private lymphoedema therapist I was going to but even with a GP's Health Care plan it was costing $55 a visit plus is right out the other side of Brisbane, so ended up doing therapy  now through the public system. 
I so hope you are coping okay and that everything will be alright for you  xox