Forum Discussion
Lymphoedema and recurrence fears
Hello everyone. It has been ages since I have posted. Since this site was re done I no longer got notifications, then 2 major surgeries in 2016 and life kind of took over. I was diagnosed with Lymph...
I might see both too I think Karen, but the private one less often perhaps. Yes knowing it's probably for life is hard to come to terms with. Yes there are worse things in life, but this is hard. The all in one sleeve and glove is hot, it is restricting, can't type properly, play the piano, guitar, can't wash hands properly in the day etc etc. It will get easier I guess, just feeling ticked off:(Karenhappyquilter said:I started with a private physio then my gp referred me to the hospital clinic. Now I see both, maybe excessive. I keep the private physio because I assume sooner or later I won't be going to the Hospital, they are so busy. I have found a good lymphatic massage therapist through the private physio.
My lympodema isn't that bad but I it's hard to take at times. It's so constant. Plus knowing it's probably for life is draining. At times I get pessimistic. I would love to put the cancer behind me but this makes it a bit more difficult to do. On the other hand there are ways to manage the condition so it's not all bad. A cheerful kind positive physio is a great support I find. It's a funny condition in that people who don't have it tend not to understand it. Good,luck with it all. Winter is coming.
Karen