Lymphoedema and recurrence fears

I totally get  you.  I got lymphedema about 2 months after a recurrence.  believe it or not it  hit me harder than the cancer and I know that seems weird.  I think it is the permanency of it all.  I was devastated.  Having said that it was 5 years ago now and you will get to a point where it gets more under control.  It is preferable to do daily lymphatic massage which I am sure that whoever bandaged you would have shown you how.  If you  do that and wear your garments as much as you can things will improve.  I was at the stage where I was only wearing mine for part of the day and I could go out to certain occasions without them. I didn't need to wear it at work all the time as I was in aircon.  That was great as I am a nurse and it is really difficult working with it.   it did  however flare up again last year, but as I knew what to do, I am getting it well and truly under control again.  I so know how you are feeling right now, but hang in there and it does get better.
Paula xxx