Lobular breast cancer just diagnosed

Thanks Arpie and June, it's good to know I have support here, it's really helped me <3

You have gone with you gut feeling so that is the right one for you.  Great news that hubby has shown a sensible side !  😉
All the best for your next appointment and decision.

@Cindi .... just making that decision & feeling comfortable with it will allow you to sleep better tonight.

I am glad hubby was supportive & not jokey xx  The final chemo/rads usually depends on the actual tissue samples tested after the mastectomies .... xx. Sometimes, as most of the flesh has been removed, you may not be required to do one or the other xx.  take care, sleep well tonight xx

Hi,

Well  I've decided defiantly on going flat.
Saw the plastic surgeon today and I don't think I can put my body through it all, my husband came with me and didn't joke around, he supports me in this so that's settled it.

I think I go in for double mastectomy next Wednesday week, will see my surgeon next Monday and find out more.

I still have no idea what follow up I'll have? chemo/ radiation? I forgot to ask all that :s

Anyway, I feel relieved I've made the decision  :)
x

Hi @Cindi,
Like you, I just have to take one day at a time. It’s hard as there’re so many side effects which one tries to take preventative measures.
I couldn’t agree more that waiting is hard. I tried not to think about it when I was waiting for results as well.. now I am doing count down on how many chemo sessions left.. lol.

Hi GinGin,

I'm so sorry you have to have the chemo, it sounds hard, but you sound very strong, I hope you get through ok. 

I don't know what I'll have to have after bilateral mastectomy, don't know if he will want me to have chemo or radiation or pills, won't know till after surgery.

More waiting.

But the more I think about it the more I think Ill go flat as I'm now 69, so flat is probably less risky for me at my age, so whatever comes after?.... what will be will be, and I'll just have to face that when the time comes.
XX

Thanks Aska. Thanks Arpie, yes I'm so grateful that the lymph nodes were clear.
I was so amazed when he said this, I'd decided they would be affected.

I am small framed and very into fitness, so the flat chest may be better for me, especially as I'm not so young anymore, if I was I'd go for the implants I think.
But will wear bras out of the house , maybe get a prosthesis?

I'll try to join those groups and see what their experiences have been.

Try to make a decision.

I wonder if I'll have to have the anti hormone drugs? probably will.

xx

@Cindi  -GREAT that it hasn't spread to the lymph nodes xx

Please consider joining both the Reconstruction Private group AND the Flat Chat Private group - even if it means putting off your decisions until after you see the Plastic Surgeon on Monday - so that you can chat with members about both options. 

If you are 'small framed' - you may well suit going Flat - and many people don't even NOTICE!   I have triathlon buddies who basically have NO boobs anyway, due to their training - so they don't look 'that different' after going 'flat'  ....

Many women are choosing this flat option (and I know that I would too, if I had to go down that path.)  Having implants means more extensive surgery and healing .... which includes the possibilities of infections & other complications .... whilst having an aesthetic flat closure .... should heal quicker & better.    There is no need to make a rushed decision in this - sadly, you won't be 'added' to the private groups probably til Monday (if you click on 'join' tonight) .... so do your homework, and make an informed decision xx. 

take care - you'll have a busy weekend thinking of your options xx

Cindi I have no advice,  but just sending you hugs!

Hello my friends,

I've come home from my appointment with my cancer surgeon now, and found that : good news, HASN'T traveled to lymph nodes!! :)

However, bad news:  the cancers were more extensive than thought,5 in the left breast each 3cm,  right long Lobular and main one in right were over 3 cm. He said I have to have double mastectomy's and I probably will have to have to have implants as I don't have any fat on me to spare for using instead of implants, which I'm worried about as he said IF I need radiation after results back from remaining breast tissue it will make the implants hard.

Sounds like maybe I really should consider having NO breasts?!
I just don't know.

Has anyone gone this way?

I see the plastic surgeon on Monday, so I'll see what he says I guess.

Got to look on the good side and think how lucky I am that it hadn't spread to lymph nodes :)
xx