Forum Discussion
Lobular breast cancer just diagnosed
Hello everyone, I'm new to this , I've only found out about my diagnosis one week ago and been going through a lot of testing over the week. I'm waiting on results of MRI on breasts, I had yesterday but wont find out anything till Monday afternoon. Also on Monday early morning I will have a pelvis CT scan to look at my liver as the liver function test is up. I have (so far) been diagnosed with one lump in left breast about 5 cm and smaller one but deeper in right breast. I've seen my specialist and he said they are Lobular and that they can't be treated with chemo. I see him again on Monday avo, I'm quite scared. He didn't seem to think my lymph nodes were swollen under my arm, but he wasn't sure. Does anyone here know if the breast MRI with contrast that I had yesterday will show up if the lymph nodes are affected? Can anyone tell me if they have or have had Lobular breast cancer? My specialist isn't the talkative kind and I can't help worrying. Hope someone can reach out to me I feel so alone as I know Lobular is more rare than the other types.
162 Replies
- Thanks GinGin , it's kind of you, how are you going?
x - @Cindi, sending hugs and lots of love. Good to have a cry, I’ve cried on numerous occasions as well. It’s normal- that’s what my GP says anyway!
🤗❤️
Gin - Hi June 1952 & Arpie, thank you so much for your kind words.
Arpie I didn't take photos as my breasts look weird after the lumpectomies and where he cut around my nipples looks horrible as well. They are all misshapen and swollen bits still.
It doesn't matter, I don't need a photo really.
I will just have a cry and be done with it!
thanks again
xx - You'll be fine, @Cindi ..... as @June1952 says, we all have those feelings xx Absolutely, you are SO much more, than just your boobs ... and the relief you will feel, knowing the cancer is GONE, is just amazing xx
I wonder - did you take some 'pics' of yourself yet, pre 'op'? I did! ;)
Take care & all the best xx - Yes, @Cindi, your feelings are the ones we all felt. Keep thinking that the beast is gone, that is what I did too. You may have an unexpected weep which comes out of the blue but you are allowed to let the tears flow. A nurse told me they worry when someone does not cry. Your breasts (or lack thereof) do not define you.
All the best for tomorrow - you are stronger than you think. 💖 - Well tomorrow is the day!
I'm going into hospital early for bilateral mastectomy, so the waiting's almost over.
I'm madly cleaning and preparing for when I come home in a couple of days.
I've come to terms with it all ....but don't know how I'll first react when I see myself in a mirror.
I'm dreading it. :(
Think I'll avoid looking for as long as I can.
Did anyone else feel like this?
I hope I'm strong enough to find it ok but I just don't know.
Anyway the main thing is to get rid of the cancer, so will try not to worry about what can't be helped.
At least the waiting is almost over.
x - Thanks Arpie, I'll try to work out how.
Appreciate it :) - Oh what a bugger your surgery has been postponed @Cindi xxx. I can fully understand that that will be SO upsetting (I'd be in tears, but have always been a cry baby!) - having to build yourself up for it & then ..... Darn!! Try & enjoy the next week then - do something SPECIAL with your reprieve xx ..... Take care xxx
Maybe consider to take some 'before pics'? I did!! (My brother suggested it!) I took 'after' ones before the dressings came off & then continued taking 'healing ones' too ..... They don't have to be 'fancy' .... but if you want to do some poses & your better half is good with photos ..... give it a go!! You can delete the funny ones! ;) Some people even get professional pics taken - as did Charlotte Tottman .... (BC Psychologist who had a double mastectomy after being diagnosed about the same time as me.) Check out her podcasts - they are REALLY GOOD!
For Series One - start at Episode 13 & continue down, then go to the top for Series 2 xx
https://soundcloud.com/bcna/sets/what-you-dont-know-until-you - Wow Arpie, some of those tatoo's looked good on the women's chests! however don't think I'd go that way.
I feel it may take a while to get used to looking at myself boobless.
But I'd rather that than going through what the plastic surgeon explained to me, if I was fatter it'd be easier, but the weight's just dropped off me in the last 6 months. I'm too skinny.
At yesterday's appointment I asked my surgeon if I'd be having more lymph nodes removed and he said "I don't see why" !! I hope there's no cancer in remaining ones though, so I said to him to "scrape as much out as he can on my chest" and he almost cracked a smile (but not quite) saying "Hmmmm not sure that'd be appropriate, we don't "scrape" ! " he's very hard to drag anything info out of.
I am quite upset now, as this morning I got a call from my surgeon's secretary early this morning telling me he's sick and having covid testing so my op tomorrow's cancelled :s
But I wouldn't want him operating while he's not 100%.
So another week's wait...... - All the best when you see your surgeon on Monday @Cindi xx .... I caught up with a buddy last weekend & she'd had an 'double aesthetic flat closure' some years ago .... and she asked her surgeon for 'no tags or dags' (lumpy bits) and he did an amazing job.
She showed me hers (and I showed her mine - but mine was just a lumpectomy!) and now I wish I'd asked for a photo, hers was SO tidy!
You can see some pics here (and they also have pics of women who've had tattoos done too, over the scarring):
https://notputtingonashirt.org/gallery/
take care xx
