Forum Discussion
Cindi
3 years agoMember
Lobular breast cancer just diagnosed
Hello everyone, I'm new to this , I've only found out about my diagnosis one week ago and been going through a lot of testing over the week. I'm waiting on results of MRI on breasts, I had yesterday but wont find out anything till Monday afternoon. Also on Monday early morning I will have a pelvis CT scan to look at my liver as the liver function test is up. I have (so far) been diagnosed with one lump in left breast about 5 cm and smaller one but deeper in right breast. I've seen my specialist and he said they are Lobular and that they can't be treated with chemo. I see him again on Monday avo, I'm quite scared. He didn't seem to think my lymph nodes were swollen under my arm, but he wasn't sure. Does anyone here know if the breast MRI with contrast that I had yesterday will show up if the lymph nodes are affected? Can anyone tell me if they have or have had Lobular breast cancer? My specialist isn't the talkative kind and I can't help worrying. Hope someone can reach out to me I feel so alone as I know Lobular is more rare than the other types.
162 Replies
- CindiMemberThank you @Afraser, you are probably right, but I'd like an occasional one maybe? @Helenloves Snoopy, I agree with @arpie, you deserve it,, and Arpie, I actually like your post ( hehe!!) sounds more fun!
But I'm being very strict with myself, and had a blood test to check my liver function and am happy to say it's back to normal, but still, if I have a glass it'll only be one.
I'm taking it easy back at the gym too, but so happy to be back, it's one of my happy places.
I eat healthy ( fish, vegies) but I do like something sweet :| not too much.
Also wanted to say I've found a doctor who has prescribed me medicinal cannabis oil ( without the THC in it) but she thinks it'll help me with my anxiety, worry, aches & pains and sleep :)
I'll be picking it up on Monday from a compounding chemist, and starting off on a tiny dose in morning and afternoon, so I'll see if that helps & let you know.
Boiling hot here today, it's now 44 degrees, not very nice, really feel for those in this heat on chemo. :(
x - arpieMemberGood on you @HelenlovesSnoopy ..... you deserve your glass of wine xxx. You've earned it.
Definitely a balancing act, @Cindi .... but I also don't deny myself one of my few pleasures these days - which is a glass (or 2) of wine at the end of the day with my dinner! .... I even have a Rum & Coke now & then too! ;) (Yeah, WICKED, I know!)
Same with Meat and anything else you eat - eat in moderation, not to excess. Same with exercise!!!
Everything, in moderation - nothing to excess. ;) - I have been having the occasional mini-bottle (basically a glassful but may be slightly over a standard drink) on non-chemo weeks. I think it’s a matter of balance as Afraser says. I’m not tempted often because my taste buds are a bit iffy anyway. But I’m of the opinion occasional is fine so long as it doesn’t creep up.
- AfraserMemberMost medical practitioners are hesitant to
recommend alcohol at all. Which is fair enough. The main thing is how great a risk is occasional alcohol. If it’s a habit, and worse if it’s an increasing habit, then it’s not good for your overall health and most studies suggest it may be linked to cancer. There is of course a difference between links, triggers and inevitable causes! I do have a glass of wine but I try and use non alcoholic wine (or beer) as much as I can. It’s not the same but it helps! I don’t drink sugary soft drinks or fruit juices, and relaxing with a nice glass of water doesn’t quite cut it! I actually find non- alcoholic beer perfectly acceptable. Good luck! - CindiMemberI was just wondering something.
Now that I'm off treatment except for the Hormone blockers, I was thinking, wouldn't it be nice to have a glass of wine again sometime, or do you think this is forbidden now.
Does anyone know if this is allowed?
I guess I could ring my breast nurse, but she's hard to get onto.........& she'd probably say.... no :(
Does anyone know?
I know it's just a little thing , but I did used to enjoy a glass ( one) before this whole nightmare begun.
x - CindiMemberThanks arpie :)
- arpieMemberI don't believe it interferes with my AIs @Cindi - and my Onc is aware I am on it - and she has given me a letter that I carry with me in the car, in case of a road side test .....
If you put Medicinal Cannabis Oil in the 'search' area - a lot of conversations about it will pop up ;) - CindiMemberHi @arpie & @iserbrown, thank you both.
I want to let you know that last night I noticed after about an hour after taking the Als I could feel the strange sensation through my arms & body, almost maybe a nerve thing, anyway , I took the melatonin I was prescribed by my GP one and half hours before bed and I actually slept!! NO RESTLESS legs or body!! :)
NO PAIN KILLERS!
This melatonin is perscription only and it's called MELATONIN ARX 2mg and I had 2 one to two hours before bed. It actually works :) :)
Also yesterday I went back to my gym and did walking and some light weight resistant stuff, listening to my body all the time so I wouldn't over do it, I'm sure that helped me last night, so will continue each day.
Arpie, I would really like to get on that medicinal cannabis oil but have tried with my doctors ( all against it) and another one suggested by a naturopath ( also refused) and the others suggested were all a very long waiting list or not taking on new patients, it's very frustrating, as there's so much evidence that it helps people with all sorts of health issues and depression, as I have.
I will keep trying.
Can you tell me please, so it doesn't interfere with the Als ?
And iserbrown, yes the restless legs started soon after I stopped the HRT I was on, I stopped that when I got diagnosed with the cancer . :(
Thank you both for your help xx - iserbrownMember@Cindi
Reading back through your posts here it would seem you perhaps have upset the healing process by vaccuming, housework too soon. You mentioned restless legs prior to starting Armidex.
Give the body time to heal
If needed there's such a thing as Pain Management clinics
Take care - arpieMemberSorry - forgot to add the link re the 'restless legs' to see if anyone else has some tips ...
https://onlinenetwork.bcna.org.au/search?domain=all_content&query=restless%20leg&scope=site&source=community
Talk to your Surgeon/Onc about the issues you are having .... there ARE options. There is also medicinal cannabis oil - which can take the edge off aches & pains & help with getting quality sleep. You usually have to have tried 2-3 different meds to control the issue .... but you need to find a medico who is prepared to give you the script, if you want to try it. I've been using it for a few years now - and it really does help.
take care & all the best x