Lobular breast cancer just diagnosed

xx My hubby was like yours .... but he did have dementia too ... my SIL was brilliant - asked smarter questions than I did!!   Glad the tracer thingy went well & not painful.  Great to be first on the list!!

No worries re the location bit ... we can work that out later xx. It could be to do with it 'dropping of the radar'!

Thinking of you for tomorrow xx. You'll be right x. You'll snooze a lot afterwards, even at home, so that is 100% normal x. Take care

Thank you Arpie, I'll try to remember all you've suggested. I've got a good pillow I bought it yesterday. I'll probably take my cousin who's been through breast cancer twice , she's a good support ( my husband wouldn't have a clue what to do or say, he's a bit hopeless like that ) to the post op appointment, the ultra sound tracer went well but I was there for 4 hours, so long, after all the extra scans and MRI, but none of it hurt even though lots of needles stuck in! very surprised.
So tomorrow morning first thing I'm in to the hospital, 6.30 am, glad it's early.
I'm still not sure how to add my location on my profile? I went into my profile ( which I haven't filled in completely yet) but couldn't work out where to put it.
Anyway, after hospital I'll have plenty of time I guess to potter around the forum, that'll be good  :)
Thanks for the best wishes x

YAY! Locations are back 'on' again, @Cindi .... go to your profile & you can add yours too ... just Sydney should be good enough ;) 

I hope your results DO come thru quickly .... I went private for my surgery (public for Rads & Oncs) and it still took over a week!  :(  The waiting really DOES suck grrr

Any ongoing treatment (post Op) is usually dependent on your Pathology results (see if you can take a trusted person with you, as an extra set of ears .... it can be difficult to remember everything that was said, if just on your own. I also recorded all my early appointments too, so I could go over them again later, if I wanted to!) - You'll probably be seeing a Medical Onc (at least once, even if a courtesy appointment) in case you DO need tablets/chemo down the line - and a Rad Onc if Radiation is put on the table ... I also saw a Lymphedema specialist who took me thru the specific exercises/massages (post op) and what to look for, in case of lymphedema (fluid build up.) 

haha I very much understand your joy of flinging the bra across the room ..... I was lucky & got my bra before my surgery - so actually wore it home & that also helped stop it flopping around with road bumps/gutters etc.  But the cushion was the bees knees!

I've lost 5kg in the last 15 months ..... and would love to lose 5kg+ more ... but have plateau'd and definitely not overeating .... Apart from getting out in my kayak, I am not a real exercise enthusiast ..... :(  

I hope the Ultrasound Tracer thingy today went well .... deep breaths for tomorrow xx Feeling a bit weepy is normal (I bawled when my hubby, brother & Sister In Law left me at the hospital!)  Once in my room tho, I was FINE!  xx.  

take care, and all the best xx We're here, if you want to vent xx

Hi Arpie
So that's why I can't find people's locations? Hope it can be fixed, isn't that annoying.
Thanks about the bra info, I'm not keen on them either, and usually love getting home and flopping down on the couch, undoing it and "flinging" it across the room! such a relief! :#
Thank you for your good wishes, I'm just wishing over and done with..and receiving results, it'll be dificult the wait for that as everyone here would know.
xx

Hi GinGin, 
Thanks for the info, quite relieved about you saying you had the bruising too, I wont worry about it and yes I do have faith in my surgeon, it's always just been the "unknown" that's scared me the most. I wonder why we loose so much weight?
I was around 68 to 69 kg about 6 months ago and am now 62kg and I'm making myself eat more than usual, but I do go to a gym each day to work out on machines and I walk on a treadmill quite fast reading my kindle which makes it not boring! it helps to relieve my stress, but that shouldn't contribute to my weight loss because I've been doing that for a couple of years now.
Oh what a relief to hear that I may get my results back sooner! I hate waiting.
I'm sorry you're on Chemo, I can imagine that's scary, I hope it works and you're soon over it all.
How often do you need the chemo?
I don't think my specialist wants me to have that, radiation and other drugs I think.
I am leaving soon for this ultra sound guided tracer thing soon so then the next thing will be the operation tomorrow.
xx

Well spotted @GinGin re our 'locations' disappearing!!  It has happened to everyone! .... (along with the helpline phone number at the bottom of the page too!) There must be gremlins in the system!  Grrr ... I've let @Mez_BCNA know.

@Cindi - I DID wear my 'soft bra' for the first couple of days after my surgery just to stop them flopping around a bit (as my surgery was all around the nipple) - not that i am 'big breasted' .... I was a 34 ... (prior to that, tho, I'd not worn a bra for 40+ years, so found it a bit restrictive & haven't worn one again since! ) 

You should be able to message your Breast Care nurse at the very least, I would think .... weekends/public holidays or not!  I think most would respond in a timely manner.  

Wishing you all the best for tomorrow and Wed xx. 

Hi @Cindi,
I’m in Melbourne. Seems like the location settings have ‘disappeared’ from my profile. I’ve lost 9 Kgs since I was diagnosed in mid July and am seeing a dietician as I am struggling to eat on most days. 

Thanks so much, PrisMay1, that was very helpful, but do I need to wear a bra to bed?!
 Why is that? does it protect the breasts?
Mine are so small already I probably wont have much left after surgery.
Also my left breast is still so bruised from the 5 biopsies done a week ago all in the same spot ( trying to get the right area as so difficult to find exactly) I'm worried the dye procedure I have to have tomorrow will be difficult for them and then the next day, will my surgeon have problems with the blackened skin?
It's all going around in my head and I'm barely sleeping, but guess I'm not alone there.
Hard also because it's a long weekend here in NSW so I feel I can't contact my cancer nurse to ask her anything.
Anyway , soon it'll be all over and the wait will be on.

Sorry to hear you’ve joined our exclusive club! I’ve had a lumpectomy twice in the same breast. 2007 for a ducal cancer and this year for a lobular cancer. The best advice I can give is get to Kmart and buy some post surgery bras. They are a crop type wireless bra with a zip up the front and $20 for 2. I got my usual size for day and sized up for night. You should get a Berlie post op bra but I find mine quite tight when I swell up. I have some lymphoedema as I’ve had a number of lymph nodes removed and radiation for my first cancer. 

@Cindi

Thank you Arpie, and Gin.
 Yes I would like to hear about your journey Gin, I really don't like the "unknown" and am the type of person who likes to get details about what to expect.
I'm quite fit ( except I've lost at least 5 kilos in the last about 4 months which isn't what I needed) and very determined to fight this, I have a lot of hope.
However the lymph node wait will be hard.
Where abouts are you located? I'm in the upper North Shore of Sydney, it would be nice if there was anyone else around this area, but happy to communicate here.
 I did speak to a special nurse on the phone at some stage, but at that time I couldn't think of many questions ( I did later of course) so much was happening so fast.
The care kit sounds helpful. I'm sure they'll sort all that out for me.