Forum Discussion
Cindi
3 years agoMember
Lobular breast cancer just diagnosed
Hello everyone, I'm new to this , I've only found out about my diagnosis one week ago and been going through a lot of testing over the week. I'm waiting on results of MRI on breasts, I had yesterday but wont find out anything till Monday afternoon. Also on Monday early morning I will have a pelvis CT scan to look at my liver as the liver function test is up. I have (so far) been diagnosed with one lump in left breast about 5 cm and smaller one but deeper in right breast. I've seen my specialist and he said they are Lobular and that they can't be treated with chemo. I see him again on Monday avo, I'm quite scared. He didn't seem to think my lymph nodes were swollen under my arm, but he wasn't sure. Does anyone here know if the breast MRI with contrast that I had yesterday will show up if the lymph nodes are affected? Can anyone tell me if they have or have had Lobular breast cancer? My specialist isn't the talkative kind and I can't help worrying. Hope someone can reach out to me I feel so alone as I know Lobular is more rare than the other types.
162 Replies
- GinGinMemberSo glad to hear all went well, @Cindi!🤗❤️I couldn’t wait to get home after 3 nights at the hospital, so am sure you are very happy to be recovering from home (without the drains!).
❤️❤️❤️Gin - arpieMemberThat's great news @Cindi, that you are feeling so good & relieved (I am guessing - I know that I was) now that the cancer is 'gorn'! xx Terrific that hubby is so supportive and accepting as well xx. Like you, I was amazed at how much better I felt almost immediately, even tho mine was just a lumpectomy.
LOL Good luck with keeping the cat off!!
Make sure you ask for printed copies of EVERY report from now on ..... specially your Pathology, tomorrow xx
All the best for your results tomorrow - don't forget to record the meeting & take your buddy/hubby with you as support/extra set of ears xx. take care xx - CindiMemberHi everyone,
I had my operation a week ago today and got out of hospital last Sunday after the remaining tube was removed, so going home without the tubes in was a blessing. ( I didn't have more lymph nodes removed)
For some reason I had to stay in hospital for 3 nights after the double mastectomy, I was thoroughly sick of it by the time Sunday came.
I'm surprised at how good I'm feeling now, and just got back from a walk, with just a tee shirt on, it really didn't bother me being flat! and I felt worried about what my husband would think when he first saw my chest, but he was lovely about it ! he made me feel much better.
There's not much pain really, just tightness, but by the night time it's a bit sore, I take pain killers at night, but will wean off soon.
I try to do the exercises, sometimes I forget though.
I just want anyone reading this please believe me, it's not as bad as you probably think!!
I was so sure it would be much more harrowing than it really was, I'm healing fast and can lie on my side now which is great as I am a side sleeper.
The hardest thing really is just keeping my biggest over weight cat off my chest in the night, he likes to cuddle up with his arms across my chest, I'm trying to teach him not to, and to lie next to me, or go in one of the many heated beds I have for the three of them....very spoilt cats!
Tomorrow I see my specialist, it's then I will find out my future....
I will post the result of that soon.
x - AfraserMemberYep, I had a nurse who claimed she never failed, had three goes and then called an anaesthetist!
- iserbrownMemberI recently needed to present at the ED. The nurse couldn't find the vein to insert a cannula. She had one go and said I will ask for help. They sent in the ultrasound expert and vein was located and cannula inserted without discomfort!
- AfraserMemberI agree with @iserbrown - not crying is normal too. I had about three snivels, at home in private, during treatment. I can sob through a sad movie but not about cancer, that’s just me. As for veins, I do wonder sometimes about training. I had only one arm that could be used because of lymphoedema, happily I had a senior oncology nurse who never failed, never needed two attempts and yet other staff would have me looking like a dot painting! They were all very attentive and thoughtful, the warm bath got pulled out a couple of times, but didn’t seem to know about using a smaller needle or using my hand (yes, I did tend to get a bruise but better than multiple punctures!).
- iserbrownMember
Don't necessarily agree!
they are more concerned when you DON'T cry! xx
take care
We're all different!
The closest I got was slightly misty eyed as I waited in the holding bay! A squeeze of the hand and the misty eyes were gone!
Acceptance and trust is where I was at and still am! - arpieMember@GinGin, I know that the local Onc Nurses were able (thru fund raising by 'friends of the hospital') to buy a 'vein finder' - there is nothing worse than someone getting stabbed numerous times in an attempt to 'find a vein'. It is amazing how some can find them 'easily' and with no pain - whilst others are butchers :(
Check out the portacaths too ... ;) - GinGinMember@Cindi, chemo is tough, I’ve just completed 4 dense dose of AC and in two weeks, will go to weekly Taxols chemo. The nurses have just proposed today that I have a PICC line as I have small veins.
but when they asked a senior nurse to look for my veins, it literally took her only seconds to find one…through chemo, I know I have small veins, but I also believe it’s the skills of an experienced nurse who can feel where are veins(am I right? 😅 - arpieMemberOh gosh, you've both been thru the mill, @Cindi and @GinGin - but TERRIFIC that you can also comfort each other - which shows great compassion in you both xx.
Tears can be cathartic .... they can be angry tears, sad tears, happy tears ..... 'no reason' tears .... just let them flow. As @June1952 said - they are more concerned when you DON'T cry! xx
take care