Forum Discussion
Just need to write it down.
Soooooooooooooooo I am here. I have never really been one for group discussions or looking for help with stuff. I am the one every one else comes to.
My world changed on the 1st March when I went to the GP with a swollen left breast and lumps. I swear I never felt them before. But now I doubt myself. And the what if started. I must of missed them.
Everything has moved so fast since then. I have had every scan possible Brain, Bone, whole body. That was on the 15th. Went back to the Surgeon that night and was told it wasn't any where else, Which was a great relief. But he asked if I knew I had Arthritis in my neck back and my feet of all places. I didn't . I haven't been to the Dr for years. Never had to. If I had a cold I took Coldral and Soldiered on.
I was booked into have a Mastectomy on the 18th. The Operation went well. I actually was quite calm about it all. Apparently there were 6 cancers in my breast how the heck did I not feel that. More self doubt. They took 10 nodes and only 2 had cancer. Which my Breast Nurse said was good.
Yesterday I was back to the hospital for fluid build up which may be an Infection. So again I was thinking did I notice it when I thought I did or was it there the day before and I missed or ignored it.
My Hubby has been great through all this. He has played soo many games of Patients on his tablet waiting around for me to go through all the tests etc its not funny.
So this is the start of my Journey. It has helped to write some of it down. There is soo much more going on in my head tho.
Maybe next time.
Thanks for listening.
16 Replies
- Janny great to hear youre off to a great start!! If anything crops up dont hesitate to call on your Team, or keep us posted on how you are going :) Hugs Melinda xo
- Well had my first chemo yesterday. Wasn't such a bad experience. I was amazed how quick it was.
Only side effects so far is a Sinus type headach. Have got to take Dexmethsone for 2 days. And have Motilium 4 time's a day. Not sure how long I take them for.
Feeling good.
Regards to you all.
Xx - We end up getting good at understanding medical lingo during this treatment. Most likely you are not her2+
This link helps explain a bit about pathology if you want. Sometimes more knowledge isn't actually better. It might be something you might want to revisit later.
http://ww5.komen.org/BreastCancer/ContentsofaPathologyReport.html
Your chemo (ACT) is common for most varieties of breast cancers. Why they use varying regime is based on your specialists good chemo knowledge. I tried to read up on why which ones are used but obviously not available for the layman.
Hope you go well and remember most side effects can be reduced with medication tweaking. Kath x - Hey @Janny54, You most definitely are not a wuss!! I reckon that a side effect of BC is that our tear ducts go into over drive. I have never been much of a crier but since BC I've cried rivers - it's a stress release and we sure need it!! Be gentle with yourself and have that much needed cry. Sending you a big hug. Xx Cath
- Hi Primek
I got a pathologhy report but I can't understand it. Lol I have probably been told but to be honest I can't remember. I know they took 10 nodes and only 2 were bad. Which everyone tells me is good.
The treatment I am having is AC every 3 weeks x 4 and Paclitaxel every week by 12.
Saw the chemo nurse yesterday and am feeling positive. - @Janny54. So do you know which chemo you are having and what pathology your bc was?
- Hi @Janny54, glad you have your treatment plan. I'm sure many of the ladies will be able to share their experiences and give you some tips. I just wanted to say you are not a wuss! I'm 8
months post mastectomy. It's incredible - I can now tell anyone about my cancer: friends, clients, strangers. But I completely struggle telling anyone associated with BCNA. I well up when speaking to anyone collecting donations, selling merchandise etc. Yesterday I dropped a box of chocolates into the girls in the Breastscreen van which is parked in our shopping centre. It took me 3 days to have the courage to do that!! and I just held it together.
We all heal emotionally in our own time, bit by bit. Sending you a hug and wishing you all he best with your treatment. Jane xx Hi
Well I have my treatment plan. 6 Months Chemo then Radiation. Lucky me.
My Chemo starts the 20th.
I have come to terms with it all I think. I am fine until some one starts talking to me about it then the tears start. I wish I could get over that. Makes me seem such a woose.
Thanks for listening.
xx
- Thanks
- I more or less wrote a word doc diary during my treatment. Some of it I shared on here. Interesting reading a year past it now.
