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Have had a single mastectomy with axillary clearance. Pathology report shows 120mm (12cm) tumour (clear margins) and 23 lymph nodes ...","body@stringLength":"702","rawBody":"I’m 36 with two young kids, newly diagnosed with lobular carcinoma. Have had a single mastectomy with axillary clearance. Pathology report shows 120mm (12cm) tumour (clear margins) and 23 lymph nodes removed, 10 with cancer. Starting 20 weeks of chemo in a couple of weeks, then radio, then hormone therapy (10 years).
Doctor and oncologist use the term ‘treating for a cure’ however I’m still afraid about what the lymph node involvement means for my future. Im looking for stories of people in a similar position and how you are looking at the situation and stories of inspiration of people who had lymph node involvement and how they are getting on down the track. Thanks.
","kudosSumWeight":0,"postTime":"2023-06-10T07:27:36.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDE","node":{"__typename":"Tag","id":"tag:children","text":"children","time":"2025-03-25T05:01:41.082-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDI","node":{"__typename":"Tag","id":"tag:coping","text":"coping","time":"2025-03-25T05:01:39.590-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDM","node":{"__typename":"Tag","id":"tag:diagnosis","text":"diagnosis","time":"2025-03-25T05:02:06.535-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDQ","node":{"__typename":"Tag","id":"tag:her2","text":"her2","time":"2025-03-25T05:01:43.022-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDU","node":{"__typename":"Tag","id":"tag:young-women","text":"young-women","time":"2025-03-25T05:01:39.456-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:41900_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":251},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"customFields":[],"body":"I’m 36 with two young kids, newly diagnosed with lobular carcinoma. Have had a single mastectomy with axillary clearance. Pathology report shows 120mm (12cm) tumour (clear margins) and 23 lymph nodes removed, 10 with cancer. Starting 20 weeks of chemo in a couple of weeks, then radio, then hormone therapy (10 years).
Doctor and oncologist use the term ‘treating for a cure’ however I’m still afraid about what the lymph node involvement means for my future. Im looking for stories of people in a similar position and how you are looking at the situation and stories of inspiration of people who had lymph node involvement and how they are getting on down the track. Thanks.
"},"Conversation:conversation:41900":{"__typename":"Conversation","id":"conversation:41900","solved":false,"topic":{"__ref":"ForumTopicMessage:message:41900"},"lastPostingActivityTime":"2023-06-10T16:37:14.000-07:00","lastPostTime":"2023-06-10T16:37:14.000-07:00","unreadReplyCount":4,"isSubscribed":false},"ModerationData:moderation_data:41900":{"__typename":"ModerationData","id":"moderation_data:41900","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:41900_1":{"__typename":"Revision","id":"revision:41900_1","lastEditTime":"2023-06-10T07:27:36.000-07:00"},"ForumReplyMessage:message:41902":{"__typename":"ForumReplyMessage","id":"message:41902","conversation":{"__ref":"Conversation:conversation:41900"},"author":{"__ref":"User:user:22636"},"revisionNum":1,"uid":41902,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"subject":"Re: Feeling alone and scared","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:41902"},"parent":{"__ref":"ForumTopicMessage:message:41900"},"body":"Hi @Lauren11, firstly sorry you are going through this. It's not easy at times and it is overwhelming especially as you start treatment. So much to learn, all the news terms and what it all means.
There is definitely hope and treatment is so good these days, even if hard at times for some. We are all definitely and handle treatment differently too.
For me after surgery I had 4 months of chemo. 3 weekly sessions and then 9 rounds which were every second week. Loosing my hair was emotional but otherwise chemo was ok except the fatigue. I drank lots of water on chemo days and always tried to take in some exercise too. Nothing too strenuous but walks were good. It was during lockdown in 2020 so I didn't see many people but had mt husband and son supporting me. Hope you have good family and friends support.
After chemo I had radium of 20 rounds and it was ok. I used a product called mepilex. It's sort of like clingwrap and it covers the area where the radium is going. It sure saved my skin. I had a couple of small painful bits near scar lines but otherwise it was ok.
I am now on hormone suppression. I am going ok with that. I had one type and had a few unwanted side effects so my oncologist changed the treatment to another one and I am going well.
There's a private group within this site for young women and that may be something you are interested in to compare notes.
My advice is stay in the present moment, go one step at a time and try not to think too far ahead as it simply causes anxiety. The what if thinking is not helpful. You can beat this. So many people have long and happy lives after treatment.
Look after yourself and take any help you can especially since you have small children. Eat well, less sugar and more vegetables, go for walks, breath deeply and maybe even consider meditation. If you need to see a counsellor or psychologist who has worked with people who have had breast cancer. I had a few sessions and it was helpful for processing all this.
Best wishes to you 💐","body@stringLength":"2140","rawBody":"Hi @Lauren11, firstly sorry you are going through this. It's not easy at times and it is overwhelming especially as you start treatment. So much to learn, all the news terms and what it all means.
There is definitely hope and treatment is so good these days, even if hard at times for some. We are all definitely and handle treatment differently too.
For me after surgery I had 4 months of chemo. 3 weekly sessions and then 9 rounds which were every second week. Loosing my hair was emotional but otherwise chemo was ok except the fatigue. I drank lots of water on chemo days and always tried to take in some exercise too. Nothing too strenuous but walks were good. It was during lockdown in 2020 so I didn't see many people but had mt husband and son supporting me. Hope you have good family and friends support.
After chemo I had radium of 20 rounds and it was ok. I used a product called mepilex. It's sort of like clingwrap and it covers the area where the radium is going. It sure saved my skin. I had a couple of small painful bits near scar lines but otherwise it was ok.
I am now on hormone suppression. I am going ok with that. I had one type and had a few unwanted side effects so my oncologist changed the treatment to another one and I am going well.
There's a private group within this site for young women and that may be something you are interested in to compare notes.
My advice is stay in the present moment, go one step at a time and try not to think too far ahead as it simply causes anxiety. The what if thinking is not helpful. You can beat this. So many people have long and happy lives after treatment.
Look after yourself and take any help you can especially since you have small children. Eat well, less sugar and more vegetables, go for walks, breath deeply and maybe even consider meditation. If you need to see a counsellor or psychologist who has worked with people who have had breast cancer. I had a few sessions and it was helpful for processing all this.
Best wishes to you 💐","kudosSumWeight":6,"repliesCount":0,"postTime":"2023-06-10T13:36:00.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":2,"currentRevision":{"__ref":"Revision:revision:41902_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[],"replies":{"__typename":"MessageConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}}},"CachedAsset:theme:customTheme1-1743643394041":{"__typename":"CachedAsset","id":"theme:customTheme1-1743643394041","value":{"id":"customTheme1","animation":{"fast":"150ms","normal":"250ms","slow":"500ms","slowest":"750ms","function":"cubic-bezier(0.07, 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