Forum Discussion

sheryn's avatar
sheryn
Member
9 years ago

Feel in limbo

HI , just need some advise as I don't know or who to ask with what comes next. 
I was told to wait for a phone call!

I had my breast lumpectomy 3 weeks ago, 10 days later I have seen the doctors for results. Stage 2 cancer and in lymph nodes too so he told me chemo will come first. the Doctor said he will contact the medical oncologist and they will get back to me. 
next tuesday will be 2 weeks will no contact at all.

Is this a normal time frame to wait to be left we my thoughts ( not good) and not knowing what is happening or how long it will take for an appointment and to start chemo? I have no one to call or talk to!

Advice and guidance would settle me  greatly. 

16 Replies

  • Nop no breast care nurse either. What havent I chase up. when do u get a breast care nurse?  looks like trying to find someone to phone NOW!
  • Hi!  Agree ring the GP office and ask who you are being referred to.  Do you have a referral from the GP?  Since you've had a lumpectomy do you have a breast care nurse?  Take the initiative as it is just knowing that gives you some sense of order.
  • I think a follow up call (or three!!) is definitely warranted. That's a long time in limbo given you have a diagnosis. I am in Sydney but I was in surgery within a week of biopsy results. I got calls galore! I probably wanted it to happen slower but hospital didn't let me! Cancer isn't a medical emergency but limbo is torturous, and getting started with treatment is important for both physical and mental health.

    take care,
    jen :)


  • I have had nothing done not extra bloods or test done I have not been told anything!
  • That's a long time. If you know who you have been referred to, ring their offices and find out if they have the paperwork and what waiting time you should expect. If you live in the city there will be more than one option regarding medical oncologists. There are usually options in the country too, they just may not be very convenient. Always keep that in mind.
    It may be the last thing you want to hear, but please don't automatically assume that someone has done what they are supposed to. Things get lost in transit--all sorts of stuff can happen that needs to followed up. Management of your cancer treatment is a complex project--never be frightened to pick up the phone and ask what is going on.
  • Not really, you should at least have a meet and greet appointment by now to discuss what chemo you will have. Any Dr including your GP can look up your file and tell you if there is an appointment or not. An orientation appointment with a nurse who will show you the chemo set up and all the do's and don't you need to know, and a booking for the actual chemo itself and a blood test before that. I presume you have had the bone density scan and ct body scan? I had Christmas in the between surgery and chemo so I started in the new year. I was still healing from surgery and it was a few weeks. Still remember Christmas and New Year in the emergency dept getting seromas drained from my wounds.