Disappointed and confused by the system

@Annski just wanted to send you a big hug. You have so much on your mind. Decision making is the hard bit. I have quite a few side effects, but I can cope with them. I am 45 and got cancer when I was 42.  I had a laugh about your bus comment. :) I am into researching things too. I was reading oncology journals at one point. Now I focus on other things.

 I found having an advanced care directive in place, tracking my health info on the My Gov site and keeping all of my documents in one place helped. I also wrote questions to ask my doctors. I decided to have chemo, radio and surgery. Tamoxifen was a step too far. Quality of life/ survival is a tough balance to negotiate when you have so much going on. The Cancer Council counsellors were absolutely wonderful at supporting me. All the best. You are doing a great job and you know your body the best, you know what risks you are happy to live with. Sit in the sunshine, go for a walk, catch up with a good friend or buy something you love. It’s about feeling like your old self and remembering that life is good, even with the crap bits in there. You will return to a new normal, promise. xx