Forum Discussion
decisions.....decisions
So hard to make decisions when you feel like you only have half the information....... far out. Final report is in, I haven't seen it bc nurse has but I didn't try to read it over the table. She contradicts what the surgeon said last Friday. I tend to think she was more accurate....I must admit I saw him as an outpatient last Friday and he was going like the clappers. He did however drain my seroma after a four hour wait and 300 kilometres.
I see the surgeon again this Friday after he has presented at the group playfest to hear what the general consensus is about a treatment plan.
So hormone positive on all three tumours, HER negative. On the right IDC grade2 9mm, positive sentinel node. ( only 1 of 1 ). Clear margins.
Bc nurse tells me the left breast would be counted as 1 tumour? Papillary one ( why did she mention micro papillary....) 17mm clear margins. the other is IDC 33mm . Calling both as grade 2, hormone +, HER -. 2 nodes from the sentinel set of 4 positive
Proliferation rate KI67 30 to 35%.
How do I decide....... if I don't really want an axilla disection ?......far out Brussel sprout...... I sort of feel mutilated enough thanks. 3 Csections an abdominal hysterectomy and now this....... far out Brussels sprout x 2. I feel like such a hot specimen :(
I see the surgeon again this Friday after he has presented at the group playfest to hear what the general consensus is about a treatment plan.
So hormone positive on all three tumours, HER negative. On the right IDC grade2 9mm, positive sentinel node. ( only 1 of 1 ). Clear margins.
Bc nurse tells me the left breast would be counted as 1 tumour? Papillary one ( why did she mention micro papillary....) 17mm clear margins. the other is IDC 33mm . Calling both as grade 2, hormone +, HER -. 2 nodes from the sentinel set of 4 positive
Proliferation rate KI67 30 to 35%.
How do I decide....... if I don't really want an axilla disection ?......far out Brussel sprout...... I sort of feel mutilated enough thanks. 3 Csections an abdominal hysterectomy and now this....... far out Brussels sprout x 2. I feel like such a hot specimen :(
31 Replies
- All the best for Thurs, @jan61 We'll be thinking of you. Big hugs xxxx
- Best of luck @jan61. K xox
- sigh.... slice poison burn..... still at the slice stage..... axilla clearance on Thursday
- Brilliant, @AllyJay - you have such a way with words! :)
- @AllyJay LOVE your analogy. I would add: the Head Chef also designs the meal, with the pleasure/welfare of the diner in mind. That's his/her sole purpose.
- @jan61...yeah, the surgeon is the butcher who cuts the meat, and the oncologist is the Head Chef, who knows what herbs and spices to use, in what quantity and sequence. This chef also knows which method of heat to use when cooking, and for how long. The chopper upperer is not the most important person in the preparation of the meal.
- @jan61 I agree with @Zoffiel. The oncologist is the CANCER specialist. The surgeon just does the slicing and dicing, but they see themselves as God. The woes I've been caused by my surgeon and my bc nurse and appalling communication! These people need to learn to stay in their own boxes when making recommendations, and actually listen to each other in the team meetings.
- Thanks people you have allayed my fears once again.
- Yep, surgeons don’t know always know about the various AI meds and often mention the one they’ve heard of the most .... Tamoxifen. Mine did! When I saw my Onc, Tamoxifen was never even mentioned, except by me!!
All the best for your ongoing treatment, @jan61 xx - I don't want to sound like a gloomy old cynic @jan61 but that's what I am, so...
Be careful about getting too committed to your surgeons opinion on what is going to happen once he's finished slicing and dicing. They are notorious for putting their two bobs worth in and prognosticating about what other specialists are going to recommend--and they get it wrong all the time. It's happened to me twice and others here have reported the same thing. Its most infuriating. If your oncologist picked up a scalpel, your surgeon would have a conniption, but that doesn't seem to stop them having an opinion about chemotherapy.
Take his advice about surgery if you trust him, but you won't know for sure what the oncologist will recommend until they see the results. Good luck and wishing you all the best for a soft landing. Mxx
